#lupuschat

We got to spend the weekend talking about what's expected of us when we're sick, beauty, performative heteronormativity, but most importantly we got to celebrate how AMAZING @tiffanyandlupus is and the incredible work she does for #lupus, #chronicillness, and #disability through #lupuschat.

Do you want to see a video on it? I'm alright with sharing as it's educational for those without lupus and a kind of solidarity to my fellow lupus friends. I'm also planning on just talking on my couch in the video, not running around vlogging it. I had a ton lined up in editing and I do it myself so I had to delay and then cancel a large portion of it. 😞 #lupus #lupuschat #youtube #pcos #ovaries #kidney #chronicpain #reallife #instadaily #dailygram #instagram https://www.instagram.com/p/BpKow51H4OS/?utm_source=ig_tumblr_share&igshid=49j0za507t05

Interested in more information on Lupus and Clinical Trials? Join host, Tiffany and her team at https://twitter.com/syncenerd_carli/status/998226893420875776?s=21 #LupusChat , today at 3pm ET with National Institute of Arthritis and Musculoskeletal and Skin Diseases for a great discussion on Lupus Research & Clinical Trials! #LupusAwarenessMonth #CTAW2018 #LupusResearchMatters @lupus_chat #lupuschat

🤷🏾‍♂️🤷🏼‍♀️Get in the know! 🙋🏻‍♂️🙋🏾‍♂️Men can get Lupus as well. #knowlupus #knowledge #lupusfighter #lupushelp #lupusawareness #lupuslife #lupusqueen #lupussisters #lupuswarrior #lupussupport #lupusfighter #lupuschick #lupuschat #spoontheory #spoonielife #spoonie #men #women #mentalhealth #health #healthiswealth #nolupus

#HospitalGlam Selfie because I may look good on the outside but inside my organs are fighting to survive while being attacked by my overactive immune system. The result is chronic pain throughout my entire body. THIS is the reality of most people living with #Lupus and many other chronic illnesses. We don't want or need your pity. We'd actually appreciate your attempt to understand our condition. #Empathy when we're having a rough time. #Compassion when we have to reschedule/cancel plans. #Thoughtfulness for providing meals, house cleaning, travel, etc when our bodies can't function normally. And most importantly #Encouragement, because it gets difficult to look forward when you're struggling to live with an incurable illness so a little extra sparkle from our loved ones really keeps us going. ♡ #LupusChat #ChronicLife #LupusWarrior #survivor

Mood: #iEatRheumatologistsForBreakfast Non-stop Doctor appointments make me cranky so "sick humor" is necessary for survival. Also it's important to #lovethyselfie so serving some serious #HospitalGlam Smize! #Lupus #ChronicLife #LupusWarrior #LupusChat

Dear #Lupus, I wrote you this affectionate love letter to show how much I truly care about you. Sincerely, Me ♡ #LupusChat #ChronicLife