#HospitalGlam: We started fine tuning my brain today. Not having to worry about giant health issues on top of being disabled is something I need to relearn how to navigate. It's been awhile. When I got sicker, I knew that if it ended it meant going back to a separate level of disability. I didn't know how long it would last or how I might feel once it was over. Along the way, I discarded the notion that it would end. It is hard to admit that. This period of adjustment, of relearning limits, feels like revisiting my initial diagnostic process, with a tinge of wisdom and a hell of a lot more community support. Thanks for every note. You have no idea how much they've meant. #neurology #ehlersdanlosgrrrls #rarediseaseday #disability #invisibleillness #goodbyetumor
