#juvinilediabetes

Hey all!! Super tired today!!! My 10 year old is on steroids for his colitis because the biologic he was on wasn’t working. He will get infusions (new meds) starting next week. The steroids give him insomnia. If he doesn’t sleep I cannot, because he’s also diabetic and he will get up and just eat.

On a good note I got to get my 30 min work out in last night, which was really hard to complete with the boys around but I did it! I am down 6lbs.. woohoo!!! 😂😂 that’s great for me just 20 more to go... lol



Love and blessings

To be honest this is something I am struggling with now. Yes I have family, my husband has family. However not everyone is equipped or able to handle children with special needs and when it comes down to it they say oh yeah we will help but really won’t. This is something that really pulls at my heart. Of coarse there is assisted living and stuff like that but that scares me.

For 15 years I worked as a cashier and a lot of assisted living home would come in and shop with the adults with disabilities. Some treat them great and some treat them like dirt. So it’s very scary. I know I have time my boys are 10,8,6. But time goes by fast.

This topic literally sends me into a panic attack. We know no one will love our kids like us. I try to take care of my self now, before not so much everything was about the kids or my husband. But I want to be around for them.

Love and blessings

Chris

I decided it was time for me to get healthy and feel good. Especially during this quarantine. So I bought a indoor bike and watching YouTube work outs. I usually work out when the kids are in bed. I know once the kids are in bed you don’t want to do anything! I get it but we as parents need to do it for us!! I also started to eat better, which can be really hard when you have kids not on the spectrum but with kids on the spectrum that need 100% monitoring all day I often forget to eat or just grab what I can. I normally realize I didn’t eat when I’m super dizzy.

I decided to start Herbalife and set my alarm for times I should eat. A also try to get up early and actually get home schooling ready, cook dinner (so there is no excuse I can’t eat or my husband) and get the kids breakfast ready. I’m not gonna lie it’s hard and I’m exhausted. My kids don’t go to sleep sometimes until after 1am. But I do it! We can do it!!

Much love and blessings

I know it’s super hard. I have three boys on the spectrum. My oldest has chronic pancreatitis, diabetes, chronic gastritis, and ulcerative colitis.

I know what it’s like to want to do for your self and can’t. I started my Herbalife journey on may 14 2020. So I just want to share how that goes with juggling everything else.

Much love and blessing

When I found out I would be getting a new insulin pump this week I had already started planning my Facebook post about it. Which shows two things: 1) I wanted to share with those who were listening that hey! This is exciting! I’m excited about it! Be excited with me! And 2) Thank you to my extremely hard working parents for making this possible for me! But when I left my doctor’s appointment this morning I knew I couldn’t write the happy post I so desperately wish I could.

About a year ago I decided to choose happiness. I left the job where I was unhappy, I cut some people out and it was horribly difficult to do, but I needed to in order to be happy. I surrounded myself with the things that made me a happier person, and although I won’t lie and say it was all rainbows and daisies 100% of the time, I felt so much better.

 Today while at my doctor’s appointment I was told that my latest HGA1C reading came back 10.3. My doctor took off his glasses, leaned back in his chair and looked at me. “I don’t know how else to say it” he said, “I’m worried about you.” Anyone not in the diabetes world might not understand, but I am around double where I should be for my blood sugar ratings. I should be sitting comfortably between 5.0-7.0. 10.3 is a horrendous, shocking number to have put in front of me.

 So when I sat in my car when the appointment was over, after promising for the millionth time “Yes I will take more care. Yes I will make an appointment with the Diabetes Clinic. Yes I will check my numbers more.” I tried to do what I started doing a year ago. I tried to push diabetes out. It wasn’t making me happy, so I’m just going to push it away.

 The thing about disease is that you can’t push it out. Pushing it out only makes it come back harder, and stronger. Today was not the first day I have pushed diabetes out. I cannot say that a single day since my mom handed this disease over to me and said “here, take it. It’s your responsibility now” that I have taken care of myself. I can absolutely say that for the last 6 years I have not.

 I can’t push diabetes out. But I can make it better. All I have ever wanted is to be a wife and a mother. That will never happen for me if I don’t take control. Now. I can’t count on anyone to motivate me for this. I have to find the motivation inside myself. Right now all I feel is shame, and fear, because without meaning to, I have been killing myself for the past 6 years.  Today I have fingers to type this. Tomorrow I may not. Today I have feet to walk me where I need to go. Tomorrow, I may not.

 This isn’t a post for sympathy. I need to take responsibility for the massive failure I have been. I don’t know how many promises I have made over the years that I will do better. I don’t know how many times I have said “it’s time, I feel it.” There is nothing to feel. You don’t wake up one day and say from now on, I’m going to do it and it’s going to be easy. It’s going to be hard. And I am going to have to work at this every day for the rest of my life. But one thing I do know is this: