having had IC for so many years means sometimes i forget just how fucked up my body is and then i read something like this and i just
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having had IC for so many years means sometimes i forget just how fucked up my body is and then i read something like this and i just

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NSA agent 1: Ok turn on the camera, let's see what she's up to.
NSA agent 2: I think she's...getting up to go to the bathroom.
NSA agent 1: Again? That's the fifth time in two hours. What is WRONG with her?
me being a dumbass every day even though it’s the worst thing for my condition:
“this condition makes me miserable, i deserve to enjoy a coffee.”
*slightly less miserable while drinking coffee*
*more miserable every moment after*
my last two brain cells:
them: *asks about my flare up*
me: *tries to explain the amount of physical activity caused a flare up of my CONDITIONS*
them: “oh i forgot your muscles aren’t used to doing very much physical activity!”
i- *deep breath*
I carry a lot of little things with me, like the one time people were asking about my condition and I asked if any of them ever had a UTI and one had and I was like "ok think of your worst pain/day with the UTI. now that's my life every single day forever." the look of horror was a truly nice reminder that this pain isn't fucking normal and I shouldn't feel weak for being controlled by it. some days I actually can make myself believe that. rarely, but sometimes. Today is one of those days I'm trying to as I sit watching someone post about their UTI and getting over it, I'm allowing myself to mourn again. This is never passing. I am in a constant cycle of grief. But at least I am reminded that this pain is devastating to healthy bodies. How can I let myself think it's all in my head or "not that bad" when I see others in the hospital and on constant pain meds for their one week of it? Grateful for the little reminders. (To be clear I feel sorry they- and anyone- have to go through it- UTIs are hell and the worst pain- I knew that even before I got IC. And I'm grateful they don't have to live with it forever. I just also am grateful for the reminder it serves me.)

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Fuck it's day three of this IC flare and my kidneys kill like a motherfucker
you ever decide to treat yourself and then spend the rest of the day in the bathroom while your bladder screams at you
there are people out here calling themselves professionals and telling IC patients to eat lemons and other acidic foods bc the body brings it from acidic to basic so it’s “safe”
go f u c k yourself for spreading heartless misinformation