How does the government expect me to hold a job if my fucking penis hurts all the time

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How does the government expect me to hold a job if my fucking penis hurts all the time

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My bladder and my vagus nerve are in a permanent stand-off and sometimes my stomach joins. Pretty much all electrolytes have citric acid in them. This is a huge trigger for my bladder pain. I avoid electrolytes. I don't ingest enough electrolytes, my nervous system kicks my ass. I'm stuck in bed barely able to open my eyes due to pots. I try to ingest electrolytes without citric acid and it's mostly the salt pills that make me sick. Can't keep down plain water when this happens so I get more dehydrated. The cycle continues. I've gotta get a new doctor who will let me get IVs cause I'm losing my mind over this cycle. Or maybe my new bladder doctor will have a bladder based solution. I just hate this shit.
Me yesterday: wow I’ve been feeling so great lately! I’m going to try some pasta with tomato sauce since I haven’t had it in ages! And maybe… I’ll have some M&Ms too 👀 I’ve just been doing so great with my diet and my medication recently that I’ve been able to have more cheat days!
Me today, waking up with what feels like my bladder tied in a knot: how could this have possibly have happened. who did this to me. was it something I said or—
Been on a bladder relaxant medication for about three weeks and suddenly I have a sex drive I haven't had in months, possibly years! I was blaming it on my mental health. But no apparently if you see a doctor who isn't a mad scientist doing experiments on you, sometimes they give you medication that helps your whole vibe. So. Good to know.
Interstitial Cystitis flare up 🤝🏻 Celiac flare up
Heating pad heals

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Hello ! I looked up the tag Interstitial Cystitis and saw that you to have the “pissing disease “ . Would you be up to talking about it ? Maybe about what you do that helps with your pain ? I’m really struggling with mine right now. And if you don’t want to talk about it I totally get it ! It fucking sucks !
Yes of course I love talking about it bc I feel like I rarely see anyone else talking about bladder issues.
Currently i'm on two medications for it. Elmiron to help with pain and recently started a bladder relaxer for overactivity and they both help but don't fix anything. If I'm honest, I mostly manage with diet. I am pretty strict about not eating any acid or spice or anything else irritating. I got a list of foods to avoid when I was first diagnosed but I think there are lists online too. When I do have a small amount of acid I take Prelief pills. They're an over the counter acid reducer that you take with food. They help but I still always have pain when I eat acidic food. Managing with diet sucks cause it basically runs your life and I am already on a separate medical diet so I've got very restricted options. But it's genuinely the most helpful thing for me.
Nevertheless sometimes I still have flare ups and stuff and I manage that pain with heat mostly. Pain meds when they will prescribe them but they are unbelievably difficult to get. So yeah I spend a lot of time crying curled up around a heating pad.
Fuck u interstitial cystitis
my IC has not had an extreme flare yet this month, i'm very grateful for this