#i can function

I’m not sure what stage of trying to get decent treatment you’re in atm, but I’d like to suggest trying a Facebook group called Nancy’s Nook (I had to make a Facebook to try it cause I’m never on there but it was really worth it) there is tons of info on there and all of it has sources, links to articles and papers a lot of which are written by the foremost doctors in endo treatment. It just really helped me a lot, and obviously everyone’s situation is different but information is power so I just wanted to let you know incase that might be helpful for you too

There’s so much misinformation about endo, even in the medical community, I had two surgeries that made my pain worse because my dr at the time was using ablation techniques instead of excision (burning instead of cutting out endo, the burning doesn’t get all of it and in my case it left a LOT of inflammation without removing the problem). Nancy’s Nook helped me learn how to tell if a dr knows what they’re talking about, there are lists of drs that have good reviews and practice excision and prescribe meds in a helpful way, etc. Again, idk if you need more info or if you have a dr you’re happy with! But I just wanted to spread the info incase it helped because I know it can be overwhelming❤️

Also if you ever need to talk or just vent or whatever I’m here, endo sucks and I hope your pain eases soon!

i’ve been real low on spoons lately, sorry for not replying right away (to this and a host of other asks), but. yeah i don’t really have the words to say how grateful i am for this? like 70% of my frustration and anger and depression around my own endo is born of the fact that my experience isn’t an outlier, that the majority of people with endometriosis (and god knows how many other problems associated with the uterine reproductive system) are treated like shit by the medical community, that no one knows anything because people don’t care to research it. That there’s been ten times as much research done on erectile dysfunction as there’s been on endometriosis.

So - it’s frustrating that i’m not alone, because I’m scared and angry on behalf of all the people who don’t have access to the kind of resources i’ve been using (research skills, medical insurance, dog-with-a-bone determination and deliberately honed language skills to make people listen). And to have - to have a stranger reach out and give me support, information, advice and places to go to find more of the same -

it means a lot to me. not just because it’s super helpful info for me personally (which, good god, it is; looking into the difference between cautery and excision is something that would never have occurred to me) but because it - it means we aren’t alone.

it’s easy to think that just because the official structures are built to exclude us, we don’t have anywhere to turn to. it’s easy to feel really devastatingly hopeless when you’re faced with this kind of institutional gaslighting and neglect and apathy.

it’s easy to forget that we can and have and do build our own structures. that there are places to turn. that people... that people care. that, because there are so many people like me, there are spaces for people like me. that someone will help.

Do I have things I need to get done today?

Yes!

Am I instead sitting in my robe, on the couch crying into my coffee as I listen to this song, because apparently Castiel speaking his truth completely took away my ability to function like an adult?

Also yes.

Am I ashamed?

Only a little, because I mean...

No, I don't care

About anything at all

But I still stop and stare

Every time that you call

See, I know that girls like you

They don't come with guarantees

So if you've got to spend your time

Oh, won't you spend it with me?

I hope we kiss goodnight

It might just end my life

But if you think that it's right, right, right

I hope we kiss goodnight

I hope we kiss goodnight

Should you invite me in

To spend the night on the floor?

Oh, please believe I'll be a gentleman

Or you can show me the door

While all my friends and I

Leaf through the books on your shelves

No, I don't want to spend my life

With anyone else

Why don't we kiss goodnight?

It might just end my life

But I'm pretty sure that it's right, right, right

Why don't we kiss goodnight?

Why don't we kiss goodnight?

Why don't we kiss goodnight?

It might just end my life

I'm pretty sure that it's right, right, right

Now we can kiss goodnight

I don't want to spend my life, life

Without your kiss goodnight

Yeah, for the rest of my life, life, life

I need your kiss goodnight

I hope we kiss goodnight