#headachefromhell

Almost done with the last preparations.. will be taken to the operation room in about 30 min. #shuntlife #shuntproblems #shuntrevision #spoonielife #brainsurgerysurvivor #brainsurgery #chronicillness #invisibleillness #intracranialhypertension #ineedacure #incurabledisease #iihsucks #pseudotumorcerebri #portacath #electrolyteimbalance #headachefromhell #myheadhurts (bij Radboudumc)

Make it go away ☹️

I'm admitted in the hospital again. I was rushed in Saturday night, because of trouble breathing, tachycardia and tachypnoe. Sunday I've had a CT scan, and it came back with the news that I have multiple bilateral pulmonary embolisms. Doctors don't know how this could happen, because I'm on blood thinners and my INR was in range. Also my potassium levels were dangerously low.. so now I'm on even more blood thinners, iv potassium and oxygen. Also I'm being monitored 24/7 because my heart rate was so high and my potassium low. I'm feeling devastated knowing I can get blood clots and PE even when using blood thinners.. it makes my anxious. --------------------------------------------------- #pulmonaryembolism #justspooniethings #hospitallife #chronicillness #invisibleillness #intracranialhypertension #chronichope #totiredtofunction #totiredtosleep #thrombosis #thrombosisawareness #keeplifeflowing #spoonielife #butyoudontlooksick #spoonie #sinusthrombosis #sickandtiredofbeingsickandtired #sickbutstrong #headachefromhell #shortofbreath (bij Isala Ziekenhuis Zwolle)

Heache remedy . . . . . . . . . . . . #Headache #headacheremedy #headachefromhell #headacheRelief #headacheracks #headachessuck #headachenextmorning #headacheallday #headacheblend #headachefood #headache #headachefree #HeadacheForTwoWeeks #headacheproblems #headachetriggers #headachegoaway #headachepose #headachemedicine #headachebalm #headachebegone #headachematerial #headacheprevention #headacheshurt #headacherack #headachefactory #headachecure #headachepain #headacheday #headacheawareness #headachesinkids https://www.instagram.com/p/BxQ8nWOAoAZ/?igshid=anpmpxtrxiar

Woke up this morning at 4:30 with a sinus headache like I haven’t had in years. Why can’t trees mate in private like everyone else? No, they have to spray their pollen all over the neighborhood. Ugh! (I’m not looking for advice. I’m just bitching) #treepollen #allergiessuck #allergyseason #thistooshallpass #headachefromhell #coneflowersoul https://www.instagram.com/p/BwWy8acHRWL/?utm_source=ig_tumblr_share&igshid=ral40ddp5be0

Seriously lol

Intracranial Hypertension (IH) is a rare neurological disorder that results in increased cerebrospinal fluid pressure within the skull. Doctors used to call it “Pseudotumor Cerebri” (aka fake tumor), because those with brain tumors also have elevated intracranial pressure—causing the same symptoms and presentation. Life with IH varies greatly from patient to patient, but is a serious condition that can greatly impact quality of life. Having severe headaches, nausea, vertigo, loud ringing in your ears, and even vision loss every single day sounds like a nightmare. But it’s reality for those with Intracranial Hypertension. Not every patient experiences all of these symptoms, but they are all very typical with IH. Some have “good days” and others do not. Many patients are unable to work or go to school because of their health. To put it bluntly—this condition is difficult to live with. Just because you see us smiling, laughing, or out doing something doesn’t always mean we’re feeling better—it means we’re trying to enjoy our lives despite our illness. Treatment options are unfortunately not great. Medication to treat IH is very harsh on the body (particularly your kidneys) and has many undesirable side effects. Those that don’t respond to medication often resort to brain shunt or stent surgeries. There is no cure or “quick fix” for IH and it’s accompanying symptoms. #iihsucks #iihawareness #invisibleillness #intracranialhypertension #headachefromhell #myheadhurts #chronicpain #chronicfatigue #chronicillness #chronichope #iih #pseudotumorcerebri #pressureheadache #vpshunt #lpshunt #butyoudontlooksick #weneedacure #blurredvision #paralysed #tinnitus #iihawarenessmonth #spoonie #spoonielife #lumbarpuncture #ineedaspinaltap #totiredtofunction https://www.instagram.com/p/BntSHddCFk0/?utm_source=ig_tumblr_share&igshid=1ud9ojtv8mt82

I’ve had an amazing swim clinic tonight from Olympic swimmers @idekker and @saskia_de_jonge. And even though I’m pretty tired now, I’ve had a blast. It was so nice to be able to swim again. I was so happy I was able to do this even though I was pretty tired all day, I really needed some positive energy. Doing thing like this is really helping me to get through the bad days. Big thanks to Inge and Saskia for making my day. 🏊‍♀️ #swimmerforlife #swimclinic #iloveswimming #missswimmingsomuch #chronicillness #invisibleillness #njtube #chronichope #headachefromhell #ineedanap #itneverstops #intracranialhypertension #fanconisyndrome #electrolyteimbalance #kidneydisease #kidneyproblems #kidneyfailure #childhoodcancersurvivor #nursingstudent #butyoudontlooksick #myheadhurts #positiveenergy #totiredtofunction #spoonielife #spoonie #spooniestrong #spoonielife (bij Optisport Dronten zwembad Overboord)