My nephrologist is truly amazing. So glad he's my doctor. Last Thursday I've had an appointment with my nephrologist. When I first walked in he said: I think you don't really feel that we'll, maybe we should draw some blood before we continue. So he called someone who could access my port to draw some blood. After that was done we talked for almost an hour about many different things, but the main thing we discussed is to do weekly potassium and phosphate infusions at the daycentre/infusion center to prevent symptomatic hypokalemic and low phosphate episodes. We start doing them weekly and if needed we'll do them more. If we know how my body reacts to the potassium and phosphate and know exactly how much I need of it, we will go ahead and do home infusions. He said some of his colleagues are a bit scared of doing so, because normally potassium can only be givin in the hospital, but he said he's doing good anything to prevent those admissions and make life a bit easier for me. I really love this nephrologist and how he's actually seeing me instead of work. He takes his time to actually talk to me and listen to me. He was also a bit frustrated with my neurosurgeon, so he decided to call him, even though he's in a different hospital. Tuesday he's calling me back and then we'll talk about when I'm going to get my first infusions planned. ----------------------------------------------- #chronichope #chronicillness #invisibleillness #kidneydisease #kidneyproblems #fanconisyndrome #hypokalemia #hypophosphatemia #symptomatichypokalemia #portacath #potassiuminfusion #ivpotassium #ivphosphate #weneedacure #weeklyinfusion #hospitallife #homeinfusion #spoonielife #spoonieproblems #spoonie #lowphosphate #lowpotassium #ineedanap #amazingdoctor #nephrology #nephrologist #totiredtofunction #sickandtiredofbeingsickandtired #butyoudontlooksick (bij Isala Ziekenhuis Zwolle)