#epilepsywar

I’m really missing the ball on top of my head. Having hair the goes down to your butt, then to having no hair at all is a real change. It has been weird not having all that hair. But in the past few months it has grown so much. Next Monday though all of that growth will be shaved off. Some of you know that I will be having another surgery. I am very excited and a little terrified. Lol. But this surgery is what I’ve been waiting for the last two years. I will be getting the RNS System put in. Hopefully this will stop me from having seizures! https://www.instagram.com/p/CAnndOMhnaK/?igshid=isxhsj4logd2

I love my neurologist way more than my last one. She will get right to the point and not sugar coat things. But she can also joke around, and have some fun. She is definitely worth the hour drive. Lol

I had my RNS surgery on Monday. The surgery went a lot better then the last one. There weren’t any extra trips to the OR this time. The last surgery was for a SEEG, and I ended up having a hematoma in recovery. I had the same surgeon as before, one of the best. Him and his team did an awesome job. I came home yesterday afternoon, and I’m hoping recovery will be easy. Thanks for everyone that was praying and thinking about me!

Today makes it one month since my RNS surgery. It is wild that it has already been a month. Recovery has been awesome. A lot easier then recovery from my SEEG. I have an appointment next week with my doctor. So hopefully I will get cleared to go back to work!

If you look up the official definition of epilepsy, it will be something like this. But here is my definition for normal people to understand. My brain isn’t like most peoples. We piss each other off a lot. I try and be nice but it normally doesn’t want to be.

Sharing my story is all I want to do. I’ve had epilepsy for the past 8 years. It has been a crazy ride. It started when I was a freshmen in high school. I didn’t really know anything about epilepsy. I’ve heard the name before. But then once I got diagnosed I started researching about it. Fast forward 8 years I have more knowledge about it. I’m finally getting answers I want. I recently had surgery for the RNS. I’m excited to continue to share my story with others so they get educated.

It has been two weeks since my RNS surgery. Since I still can’t go back to work I find myself having way too much screen time. Which a lot of it is due to TikTok. It’s kinda like quick sand, it drags you in and you can’t get out. Lol. But to help with that, I was super excited to finally get this book! I love this family and the bond Harold and Rachel have. I’m excited to continue reading it! Ladies…and guys I guess too lol If you need a good book to read about a husband and wife, here it is. They also have a YouTube channel. So if you’re having a bad day watch some of their vlogs. Their kids are the cutest, they’ll brighten anyone’s day!

《Caution》The second picture might be a little to much for some people. I haven’t shared my picture of my stitches and staple marks from my SEEG. As you can see I had staples that ran right along my hair line. They had to put 26 in. Then I got 16 stitches at every hole where they put a probe. This picture was two weeks after I had my SEEG. The morning of this picture I had my staples taken out. The second picture is from my recent surgery. June 1st I had the RNS implanted. It was really nice they didn’t shave a lot of my hair. They just trimmed a little bit of it.