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It's kinda weird that this thing is in my head. It has been a little over 3 months since I've had the RNS device implaned. After a month I got it turned on. My neurologist and techs have been making some changes with the settings. Hopefully soon they will find the perfect settings for me to be seizure free!
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I finally had my post RNS surgery doctor appointment today. He went over my CT scan I got right after recovery. It was weird looking at them. Especially the the second picture that is in color. I even said to him, "That's freaking creepy." Lol.
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He looked at my incision, which is on the left side. When he went to look at it, he went to the right side. I was like it's on the other side. Lol. He said the incision looked good. It is still not fully healed.
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He cleared me to go back to work. Which I'm super excited about. I haven't worked in almost 2 months. I've been going crazy. So Saturday will be my first day back.
I’m really missing the ball on top of my head. Having hair the goes down to your butt, then to having no hair at all is a real change. It has been weird not having all that hair. But in the past few months it has grown so much. Next Monday though all of that growth will be shaved off. Some of you know that I will be having another surgery. I am very excited and a little terrified. Lol. But this surgery is what I’ve been waiting for the last two years. I will be getting the RNS System put in. Hopefully this will stop me from having seizures! https://www.instagram.com/p/CAnndOMhnaK/?igshid=isxhsj4logd2
I met with my neurologist today and she improved the settings on my RNS again. It’s so interesting to look at the information it gathers, and when the device actually sends that shock.
I love my neurologist way more than my last one. She will get right to the point and not sugar coat things. But she can also joke around, and have some fun. She is definitely worth the hour drive. Lol
I had my RNS surgery on Monday. The surgery went a lot better then the last one. There weren’t any extra trips to the OR this time. The last surgery was for a SEEG, and I ended up having a hematoma in recovery. I had the same surgeon as before, one of the best. Him and his team did an awesome job. I came home yesterday afternoon, and I’m hoping recovery will be easy. Thanks for everyone that was praying and thinking about me!
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Today makes it one month since my RNS surgery. It is wild that it has already been a month. Recovery has been awesome. A lot easier then recovery from my SEEG. I have an appointment next week with my doctor. So hopefully I will get cleared to go back to work!
If you look up the official definition of epilepsy, it will be something like this. But here is my definition for normal people to understand. My brain isn’t like most peoples. We piss each other off a lot. I try and be nice but it normally doesn’t want to be.
Epilepsy is a struggle. It’s been a rough road. I know you have been fighting long and hard. You have faced adversity and it has taken a tole on you. Stay strong, my friend. You are stronger than you think. Strive for one small breakthrough. Just one. Reflect on your success. Embrace the feeling of this feat and it will set you on the path to tackle your next obstacle. Stay strong, my friend. Stay Strong. P.S. Join me for a free Masterclass You will learn of holistic practices that allow many to be in control of their seizures. On Thursday March 2nd. If you live with epilepsy, it will touch you directly. Email me to attend at [email protected] The Masterclass will be on Thursday March 2nd at 3pm Pacific Standard Time (6pm EST). Send me an email and I will respond to you with a personal invitation to the Masterclass. That’s 3:00pm PST! See you there, Daniel Your Holistic Epilepsy Health Coach #epilepsyawareness #epilepsy #epilepsyawarenessmonth #epilepsywarrior #epilepsyadvocate https://www.instagram.com/p/CNI0ZPHDyfz/?igshid=NGJjMDIxMWI=
