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“Jamal must protest! These were the fifth set of legs Jamal has been given! And I was led to believe they were top quality. Top quality!”
(I spend a looot of time listening to Dungeon Crawler Carl … it’s become my comfort space when I can’t sleep because of my condition and I have listened to the audiobooks probably 20+ times. Maaaaybe not healthy. Pretty sure I should get an achievement for that. 😂)
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Pouring my heart out in this comic because I don't know what else to do. I would appreciate if you read it, as I could really use some help. Thank you.
My kofi: https://ko-fi.com/creepincrawl
muscle weakness in my biceps is making showering substantially more difficult, especially because my muscles get weaker with heat
(open to advice that isn't cold showers)
My diagnosis celebration/Valentine’s Day gift to myself
Both POTS and dermatomyositis awareness use blue/teal so the color kinda worked out by chance
health update--sorry for doing so much of these, but it’s keeping me sane.
SO. it turns out that I didn’t get this new disease/diagnosis BECAUSE of covid, but it got much worse because of covid--which allowed my rheums to finally diagnose it (AFTER TEN YEARS RIP). dermatomyositis is really difficult to diagnose mostly because it’s so damn rare; what I read was that like 40-90 people in a MILLION get it (or, at least, are diagnosed ...), so most drs aren’t very familiar with it & don’t look for it.
I can’t believe it, tho. after 10 years ... I finally know what the fuck is up w/ my body. -__- so much of drs just “giving up” on my symptoms bc they’re like “idek what’s wrong with you, maybe you’re just weak/unlucky/got a weird kind of eczema, who knows, lol?” ... it was actually this disease. jesus.
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Last week I was diagnosed with conversion disorder which is when your body turns your stress and anxiety into neurological symptoms. For me they are constant and intense tremors, muscle spasms, weakness, pins and needles feeling, numbness and a whole bunch more. I have no control over any of these symptoms because my body is actually doing it (I can’t just tell my body to stop) and I’m in a lot of physical pain and I physically cannot drive, go up and down stairs, or walk for longer than a minute or two so I’ve been out of work since October because of this.
But here’s the joke my doctor thinks my stress and anxiety is caused by my chronic illnesses and chronic pain...so my body decided to give itself more pain because it couldn’t deal with the pain it was already going through??? And my stress and anxiety is subconscious so I don’t even feel like I’m stressed...
Also, I’ve been trying to find a therapist because that’s the way to treat it and I’ve called at least 15 therapists this week and I can’t get an appointment 😭 and I’ve never been to therapy so I’m just nervous about that too
Also if anyone was wondering I have dermatomyositis (autoimmune disease), endometriosis, chronic migraine, fibromyalgia and trigeminal neuralgia 🙃👍
Autoimmune Diseases
Autoimmune diseases refer to problems with the acquired immune system’s reactions. Immune cells target the body’s own healthy tissues by mistake, signaling the body to attack them. Normally Your immune system is the network of cells and tissues throughout your body that work together to defend you from viruses, bacteria, and infection. It tries to identify, kill, and eliminate the invaders that…
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Seriously THE BEST!!! I have a jar of this cream in almost every room of the house!!! It helps my hands sooooo much! I am currently having a flare & this cream helps soothe the red & inflamed skin on my hands. I also get Gottron’s papules, which are sores that hurt & are common in those with dermatomyositis. This cream is a lifesaver!! I use the face wash, bar soap & night cream as well. So glad that my dermatologist recommended it!💙
