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Pouring my heart out in this comic because I don't know what else to do. I would appreciate if you read it, as I could really use some help. Thank you.
My kofi: https://ko-fi.com/creepincrawl
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
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“Jamal must protest! These were the fifth set of legs Jamal has been given! And I was led to believe they were top quality. Top quality!”
(I spend a looot of time listening to Dungeon Crawler Carl … it’s become my comfort space when I can’t sleep because of my condition and I have listened to the audiobooks probably 20+ times. Maaaaybe not healthy. Pretty sure I should get an achievement for that. 😂)
muscle weakness in my biceps is making showering substantially more difficult, especially because my muscles get weaker with heat
(open to advice that isn't cold showers)
My diagnosis celebration/Valentine’s Day gift to myself
Both POTS and dermatomyositis awareness use blue/teal so the color kinda worked out by chance
Guys! Did I mention that when I last saw my pulmonologist Friday I had great news!!
I first had to get a PFT done with a respiratory therapist and during part of the exam after I did the part of the test that measures MIP/MEP the respiratory therapist was like “omg you have GOT to see this” and he showed me that my MIP/MEP percentages had increased by like 30 points!!!
so I was so happy about that, and then during my appointment with my pulmonologist I met with her resident first and before the resident left she was like “thank you for telling me your story, and I’m so happy about your case. Before coming in I read your medical history and I was expecting someone with rashes and a cough who was just weak but you’re not”.
idk it just made me really happy that even clinicians think I’m doing well :)
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
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Do I / friends know anyone on Tumblr with experience of MCAS, lupus, dermatomyositis or any other autoimmune conditions causing skin issues?
Please DM me if so. Thanks so much!
health update--sorry for doing so much of these, but it’s keeping me sane.
SO. it turns out that I didn’t get this new disease/diagnosis BECAUSE of covid, but it got much worse because of covid--which allowed my rheums to finally diagnose it (AFTER TEN YEARS RIP). dermatomyositis is really difficult to diagnose mostly because it’s so damn rare; what I read was that like 40-90 people in a MILLION get it (or, at least, are diagnosed ...), so most drs aren’t very familiar with it & don’t look for it.
I can’t believe it, tho. after 10 years ... I finally know what the fuck is up w/ my body. -__- so much of drs just “giving up” on my symptoms bc they’re like “idek what’s wrong with you, maybe you’re just weak/unlucky/got a weird kind of eczema, who knows, lol?” ... it was actually this disease. jesus.
Last week I was diagnosed with conversion disorder which is when your body turns your stress and anxiety into neurological symptoms. For me they are constant and intense tremors, muscle spasms, weakness, pins and needles feeling, numbness and a whole bunch more. I have no control over any of these symptoms because my body is actually doing it (I can’t just tell my body to stop) and I’m in a lot of physical pain and I physically cannot drive, go up and down stairs, or walk for longer than a minute or two so I’ve been out of work since October because of this.
But here’s the joke my doctor thinks my stress and anxiety is caused by my chronic illnesses and chronic pain...so my body decided to give itself more pain because it couldn’t deal with the pain it was already going through??? And my stress and anxiety is subconscious so I don’t even feel like I’m stressed...
Also, I’ve been trying to find a therapist because that’s the way to treat it and I’ve called at least 15 therapists this week and I can’t get an appointment 😭 and I’ve never been to therapy so I’m just nervous about that too
Also if anyone was wondering I have dermatomyositis (autoimmune disease), endometriosis, chronic migraine, fibromyalgia and trigeminal neuralgia 🙃👍
