#cfrd

I feel like my url deserves a little explanation. I’m not (usually) a *salty* person but here’s why.

I have Cystic Fibrosis, it’s a chronic illness that affects the lungs, digestive system and more. We are best known for our chronic coughs but it’s much more than that. CF also affects sweat glands and the amount of salt that I release when I sweat which leads to extremely salty-tasting skin. (Don’t be gross y’all, a kiss on the head is all you need to taste the salt.) My body loses a LOT of salt when I sweat. Like a LOT. So I crave salt and I eat LOADS of it which is awesome when people tell me eating too much is bad for my cholesterol I lay them down with FACTS which is I . Need . Salt . And lots of it. 

Hi everyone!

After thinking for a while about what topics I wanted to post about, I decided to choose topics that I myself am actually intimately familiar with, as I have Cystic Fibrosis, and recently also have been diagnosed with Cystic Fibrosis-related diabetes.

On some days, I might post information about these topics, and on other days I will just try to spread awareness by doing more simple things, for example, I might post my blood sugar (mmol/L), and whether or not I coughed a lot, or if I had trouble breathing.

I’m also glad he’s planning on starting me on a pump to help with my day to day activities after determining the bolus needed.

CF is the gift that keeps on giving—this time, it brought NTM and a hospital stay. CFRD tagging along, as usual.

It’s hard to explain what it feels like to fight your own body every day. The exhaustion hits different when your lungs feel like they’re filled with glass and your blood sugar is doing gymnastics. But here's the thing: I'm still here. Breathing, battling, and holding onto hope with both hands.

This isn't a cry for sympathy—it's a reminder. A reminder that surviving is a form of strength. That getting up, taking meds, doing treatments, advocating for your care... that’s brave as hell.

To my fellow chronic illness warriors: your story isn’t over. You are not your diagnosis. You are fire wrapped in flesh, and even on your worst days, you are enough.