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Hallo ihr, ich weiß ich hab jetzt nicht so viele deutsche follower aber ich dachte ich versuchs trotzdem. Das ist ne petition fürs Behindertengleichstellungsgesetz.
Man versucht damit Barrierefreiheit als Pflicht durchsetzen (crazy das es nicht schon jetzt Standard ist)
Wäre nice wenn ihrs unterschrieben könntet (oder mindestens teilen?) x)
Jetzt innn.it-Petition unterschreiben & René Schaar & Sabrina Lorenz unterstützen!
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CN: Self-injury, Traumatic Brain Injury (TBI), autistic meltdowns, fixation
Does anyone have advice for preventing head and brain injury during meltdowns and for "safe" fixation?
Context:
Unfortunately, I have increasing violent meltdowns. I repeatedly hit myself in the head and hit my head against walls, floors etc. I always have swellings all over my head. I've had multiple concussions in the last few months.
A doctor did a brain MRI on me about a year ago. The results were good but I've had many meltdowns after that MRI was taken. I am worried about TBI (traumatic brain injury). This is because of the force I use and because I've noticed a sharp increase in "scatterbrainedness" and speech issues. forget words or mix them up.
I don't have any self control for most part of my meltdowns. However, I've twice managed to switch to hair pulling and scratching my face after some time — however, the scratching is not much better. It's extremely visible and leaves scars.
For that reason, my fiancée/caregiver always has to fixate me. She does that by laying on top of me, grabbing my wrists and pinning me down with her hands, legs and body until it stops and I go into stupor. Oftentimes, that leads to me hurting her unintentionally. It also goes beyond her physical strength.
Questions:
- Do you struggle with similar issues? If so, do you also feel like the SI "has" to target the head? If so, how do you deal with that?
- Do you have recommendations for replacement behaviour?
- Do you think I should I establish routine medical check-ups — if so, which ones? I live in Germany. Access to medical care isn't an issue for me.
- Do you wear head protection permanently or situation-dependant — if so, which kind(s)? Do you prevent or reduce the risk of TBI any other way?
- What methods of fixation do you use/are used on you?*
I tried to stick to simple language. English is not my first language. Please tell me if you need clarification.
Please do not feel obligated to answer all questions. I am really thankful for any kind of advice. Thank you for your time.
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* If you want to tell me that fixation is abusive, save it. She has to fixate me because I am a substantial risk not just to my own safety but my life. Without fixation, I'd by now be severely injured and more likely dead.
I am at a bit of a loss here. Basically my insurance rejected my request for financial help for disabled people. I don't really know how to properly translate it though because specific services might not have an English equivalent so I am gonna write this post in the language of the country I currently have to deal with due to my location. Also I am revealing the name of that insurance now. After they already tried to reject my request for free insurance three times it is time. (They had to comply in the end because I was legally entitled to that insurance). Anyway.
Jedenfalls hat die Techniker Krankenkasse gerade meinen Antrag auf Pflegegeld abgewiesen (?). Und die Begründung ist totaler Bullshit. Es wurde nämlich ein Gutachten vom Medizinischen Dienst erstellt, dass der Realität nicht entspricht. Dabei geht es um die psychologischen Aspekt des Gutachtens. Zum Beispiel das Erkennen von Gesichtern und die räumliche sowie zeitliche Orientierung. Damit habe ich große Probleme aber die haben mir in diesen Kategorien 0 Punkte gegeben, also quai angegegben, dass da keine Probleme vorliegen. Jetzt muss ich rausfinden, was ich noch machen kann um überhaupt finanzielle Unterstützung zu bekommen. Denn ich bin schwerbehindert und erwerbsunfähig und bekomme keinerlei Leistungen von irgendwelchen Ämtern. Also auch kein Bürgergeld oder so. Das kann doch nicht sein, dass man als Schwerbehinderter so im Stich gelassen wird...
🥰
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Drei gute Gründe, bei der großen Umfrage zu Diskriminierung mitzumachen: 1. Deine Stimme hilft, Diskriminierung sichtbar zu machen.
Ich LIEBE Umfragen. Aber die hier hat mir leider so überhaupt keinen Spaß gemacht.
(Es folgt nur mein persönlicher Rant.)
Hoffe ihr habt einen schönen 3ten Advent. Ich bin von der Reha zurück. Ich versuche so wenig wie möglich im sitzrolli zu sein und möglichst viel mit dem unterarmrollator zu laufen.
Iiebe Grüße
