Insignificant Ramblings

Over four years ago I had the crazy idea to start a blog about living with a disease called spinal muscular atrophy. The picture above is one of the very sexy first I ever posted (taken during a particularly sexy rough stretch of time when my weight was at a lifetime low of 46 pounds). I was scared and confused about my life and the future.

I can’t even begin to capture how much my life has changed for the better since that moment. You guys found my blog and it exploded to have over 600,000 followers. I was asked to write a book, and I did, and to my utter amazement it is selling like crazy. I’ve made so many friends. I’ve fallen in love. I’ve traveled the country. 

The best part has been starting my own nonprofit organization to help other people living with my disease. Never in a million years did I imagine I would graduate college and hop right into a full time career as the President of a nonprofit. But through your support, that is exactly what I did.

We are called Laughing At My Nightmare, Inc. if you are newer to my blog, and our mission is to provide medical and adaptive equipment to people living with muscular dystrophy. You’d be astounded by the shit-ton of equipment that it takes to keep me alive. I’ve been lucky to always have what I need. Many can’t say the same, and I want to change that.

Tonight, I have a favor to ask all of you. We are currently nearing the end of a huge campaign called Tech the Halls. The goal is to raise $20,000 to help my nonprofit purchase equipment for those in need. We can only reach our goal if my community of readers and supporters here on Tumblr come together to help us. 

If you have a moment, I would ask that you check out our fundraising page here: http://igg.me/at/tech-the-halls/x/9161855

Please consider a reblog so that we can get this in front of enough people to reach our goal.