bad queer rep\\not native enough

Picking Fights

https://crimethinc.com/SeaSol

Trees, Stars And Birds. 1919. Cover art.

“As soon as it gets dark the barn owl goes hunting.” More Adventures. 1940. Armstrong Sperry, illus. 

To recover, you literally need to manually learn skills that most people learn as a toddler

You need to learn what makes your body uncomfortable, and what to do to fix it

If you are high-masking, that usually means that you have learned to ignore every distress signal your body sends unless it is a distress signal that a neurotypical person would recognize. People have likely been unintentionally gaslighting you about your lived experience your entire life

If you feel bad or panicked for no reason, stop and try to pay attention to your body. Are you tense? You are likely feeling physical pain somewhere. If you've been gaslit about your pain your entire life, you might not be able to identify it.

Go through a sensory checklist.

SIGHT: Try closing and covering your eyes. If this gives you relief, the lights are probably too bright. You may also need differently-colored lights

SOUND: Cover your ears. Does this give you relief? If so, you may need earplugs or noise canceling headphones. You may also benefit from a neutral or pleasant background noise, like soft music or brown noise.

TOUCH: Are your clothes uncomfortable? Your chair? Your body? Do you feel greasy, like you need a shower? Do you need softer, sensory-friendly clothing?

TASTE: Do you need to brush your teeth or tongue? Would chewing on something help?

SMELL: Is there a strong or unpleasant smell in the room? Do you need to clean or empty a trash can? Would an air purifier help? Would a pleasant smell like a candle help?

INTEROCEPTION: Are you hungry? Thirsty? Tired? How is your posture? Are any of your muscles tight or sore? Scan your body slowly from head to feet, tensing and loosening each group of muscles. Going for a walk or doing a series of quick stretches may help a lot.

Learning how to do this stuff is not intuitive, if you've had an entire lifetime of gaslighting telling you that everything hurting you isn't a big deal and you're being dramatic over nothing.

This takes time, it takes work, it's not intuitive, and it's hard. Most people forget how hard it is, because they learned this as toddlers.

People often ask me about my unmasking journey and express surprise to hear that such a big part of it has been 1) accepting I must avoid light/the sun and 2) wearing clothes I can stand.

I’ll play it jokey and say it like “well it took me far too long to realize that my former wardrobe made me want to jump off a bridge.” Or “turns out my old underwear was anti-autistic.” Or “for whatever reason when it’s too bright, I can’t think.”

MECFS is not rare, can happen to anyone (but disproportionately affect women and other marginalized identities) and is most often triggered by a virus like EBV or Covid.

It has some of the lowest quality life score of any disease.

It is extremely underfunded

Take a few minutes of your day to educate yourself on MECFS.

Even raising knowledge and education about MECFS can make a difference for patients who often feel misunderstood and alone on top of dealing with a severe illness.