“Fair Rosamund”
unidentified English pre-Raphaelite artist
oil on canvas, 19th century
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@nightshadewine
“Fair Rosamund”
unidentified English pre-Raphaelite artist
oil on canvas, 19th century

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HATE when u can feel ur intestines writhing. cease your wriggling insolent belly worm
two things doctors know:
leave patient alone in a room for 6 hours
incorrectly file paperwork
good morning! remember every day is a chance to begin anew [breaks off and sits on the edge of the bed staring blankly for 23 minutes before running a hand down face like a tortured movie protagonist] my god where did it all go so wrong
I don't think most people appreciate that changing into your night pyjamas when you've been wearing your day pyjamas all day is really exciting

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it is okay to have a high amount of screen time, ESPECIALLY if you are disabled and homebound/bedbound.
It is not morally wrong to try to stay connected with the outside world, do not listen to the opinions of able bodied people who could not fathom your reality.
as a disabled person, i know what it’s like to not be able to work. that’s why this disability pride month i’m partnering with every single printer,
It's so fucking baffling to me that hospitals went back to not masking. Like good news, we have lots of empirical evidence that masking prevents infections! Now to go back to walking around this absolute petri dish of a building filled with extremely vulnerable people unmasked
im a fake fan of everything i like because i cant remember anything

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I’m going to write this as a cancer patient, but this is really meant for anybody in the disability community/chronically ill/mentally ill/anything. I think something that is not talked about very much in this specific community is grief. And I’m not talking about just any grief. I am talking about silent nights, where there is no comfort this universe could offer you that would ever make any of this feel okay, I’m talking about the days that you are so stuck in your head, nothing feels real, I’m talking about slowly starting to feel like you’re losing the spark you once had, the curiosity you once had, the energy you had. I’m talking about grief that exhausts a human to the point of being bedridden. And I don’t think we talk about how many times this happens, because grief is not a one and done thing, unfortunately. It happens whenever it pleases. It happens after a diagnosis, it happens after a flare, it happens after a triggering conversation, it happens after a doctor’s appointment, even if it was just routine. I think we need to make more space for grief. I think we need to stop expecting people to get used to their diagnosis and their new life that has to accommodate it. I don’t think it’s selfish in any way shape or form for somebody to not hide their grief. This is somebody’s life, this is somebody’s entire existence that has been utterly ripped out from underneath them, flipped upside down, and will never be able to be the same. This is having to accept that you never got to say goodbye to some things. This is having to accept that you can’t do some things anymore, this is having to accept that you need accommodations, this is having to accept that your life is not less than, but it will be different, it is having to accept that you have to figure out how the hell to live like you were just given a new life with no instruction manual. So I think grief needs to be talked about more, I think grief needs to be taken much more seriously, I think grief needs to be understood and accepted a lot more.
And the very last thing I will say, to anyone grieving, grieve as much as you need to, but please know this, your life will never be less than because of a diagnosis, or because you need accommodations, your life, you, are worthy of every single ounce of joy and peace and care and love as anyone else, and I desperately need you to drill that into your mind and never question it.
how was the destroying and betraying yourself for nothing was the destroying and betraying yourself for nothing fun? it didn't look fun
hey does anyone know how much longer we have to endure?
happy disability pride month to those who didn’t make it, for whatever reason. you will not be forgotten.
It's disability pride month
I hope you have disabled friends

Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
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if i hear another news report say the words "number of young people on benefits" and don't follow it up somewhere in the next 5 minutes with the word "pandemic" i am going to call down a Plague. a lot of activism happens in a vacuum, and i'm usually fairly forgiving of what people are aware of. even a lot of disability activism can fly under the radar and i understand that what appears to be fundamental knowledge simply isn't widely known. but how can the world live through a global pandemic which causes chronic health conditions, and then not once make the link that the pandemic is behind rising unemployment? how can you talk about benefits but then not talk about the disability? it's like their worldview is so cemented in the idea that only lazy people go on benefits that they don't need to go any deeper because their worldview has been confirmed: the new, lazy generation is taking money off the state.
There is a particular kind of suffering that comes from realizing you may spend the rest of your life in pain while also being expected to continue fighting for care with the same energy you had years ago.