But I have tried everything that does

do not want shit from doctors, thank you. disabled people, please.

Or at least, I've written a lot about this.

Here's a masterpost of resources that I've personally found useful

I'm still in the process of annotating all of it but it is all labeled and grouped by topic.

If that's a little much here's the original post it was based on. There's some overlap, some unique.

Here's a write up the personal care kit I keep by my bed

Here's how I handle my room since environment impacts me a fair bit

Here's how I handle my laundry specifically (no fold)

When I have more energy, here's resources I use to manage my house

I wrote a free minizine called The Bedside Companion that has a quick reference of my favorite ideas and resources that you can keep by your bed (good for when looking at a phone causes headaches).

I also wrote a free minizine called Fuck Goals about how I manage task overwhelm with being disabled and not being able to do anything consistently.

I'm working on zome full length zines on meditation with chronic pain and some other spoonie stuff but Go Date Yourself might be a good one too if you find yourself alone a lot. Also free.

🏳️‍🌈 This year's pride make! (2026) 🏳️‍🌈 I did finish it and wear it to an event in June, just forgot to post about it here 'till now. ;)

If I actually wear this for proper photos at some point, I'll probably jazz it up with self-fabric trim, tucker, fichu, engageantes, etc - it's a bit too modern/plain this way.

Pattern is the Amalia Jacket from Scroop Patterns, and hidden long seams were done on machine but I hand-stitched everything that would be visible. Got it all done pretty quickly in the week prior! I had to futz with the fit, as the expected bust-to-waist ratio on this pattern is only a 6" difference and in these stays I'm 10" (and I'm not even busty anymore..........) so the waist ratios of all the pieces are kind of uneven (oops). but in the end it's not even noticeable, so I'm happy enough! it just means i'm going to have to do the same futzing the next time I use it. really though, my kingdom for more patterns that have larger b-w ratios.

So are

colostomy bags

Diapers

insulin pumps

Oxygen systems

rollators

hearing aids

compression garments

prosthetics

FREEDOM AIDS

- service animals

- noise cancelling headphones/ear defenders

- wheelchair attachments

- fidgets

IT’S DISABILITY PRIDE MONTH YALL

they're doing hella journalism on tiktok. the top songs of the billboard charts at key moments in the show.

rest stops on highways

trails by the highway just out of earshot of traffic

schools during breaks

those little beaches right next to ferry docks

your friends living room once everybody but you is asleep

the lighting section of home depot

A lot of these places are called liminal spaces - which means they are throughways from one space to the next. Places like rest stops, stairwells, trains, parking lots, waiting rooms, airports feel weird when you’re in them because their existence is not about themselves, but the things before and after them. They have no definitive place outside of their relationship to the spaces you are coming from and going to. Reality feels altered here because we’re not really supposed to be in them for a long time for think about them as their own entities, and when we do they seem odd and out of place.

The other spaces feel weird because our brains are hard-wired for context - we like things to belong to a certain place and time and when we experience those things outside of the context our brains have developed for them, our brains are like NOPE SHIT THIS ISN’T RIGHT GET OUT ABORT ABORT. Schools not in session, empty museums, being awake when other people are asleep - all these things and spaces feel weird because our brain is like “I already have a context for this space and this is not it so it must be dangerous.” Our rational understanding can sometimes override that immediate “danger” impulse but we’re still left with a feeling of wariness and unease.