⋆.˚⊹₊˖ꪑꪖ᥅ᥴꫝ˖₊⊹˚.⋆

“I got freaks NINE days out of the week — I CAN GET MORE.”

“….—only seven days in a week.”

…

nope! he did record it, though—here's his version.

There are 760,000 Australians on the National Disability Insurance Scheme, the system that - if they feel like it and your personalised plan says you get to have it - provides funding for everything from personal hygiene care to support workers to therapies to assistive technology. It's already very hard for disabled people to get on the NDIS, regardless of your disability. It's near impossible to access most support and equipment without being on the NDIS. And the government has announced that they want that number to drop to 600,000 in four years. 160,000 of us cut off the Scheme - and countless more denied access. This will cause deaths. People will die and people will suffer because there is no safety net. The NDIS is the only option for most of us. Even private health insurance doesn't cover most of these things. Nobody will swoop in to save us.

The bill wants to give the (non disabled!) NDIS minister basically unlimited power to cut our funding. They're already planning what they'd do with that power. What rights they'll strip from us. What dignity and freedom they'll remove to make their budget look better.

The bill wants to force people to try every treatment out there before they're allowed to be on the NDIS. Including if the treatment is literally impossible to access. There’s a lot of us living in regional areas or out bush who can't just pop to the capital cities for specialists. This will especially hurt disabled First Nations people in regional and remote communities, who already experience limited access to healthcare.

If you're australian and worried, the ABC did a good breakdown of the proposed changes.

I know australia stuff doesn't really pop up on the radar on this site, but I want everyone to know what's going on. What we're fighting for here. Your australian disabled friends might be NDIS participants fearing for their life, rights, and freedom. They might not be a participant and afraid these changes mean they never will have access. We deserve better. The government built a system with no backup plan, and now they want hundreds of thousands of disabled people to pay the price for their bad planning.

my friend's 5 year old recently got a toy veterinary medicine set - it's super cool, like one of those mini play kitchens a lot of kids have, but it's set up to pretend to be a vet (it's this thing) - it has stuffed animals and things to weigh them, give them medicine, take x-rays, write on their charts, etc.

so this kid, who is five and to my knowledge has no experience in the administrative bureaucracy of modern healthcare, puts a stuffed pig named Piggy on the exam table. she pretends to draw blood from Piggy using a fake syringe, and the blood goes into a toy test tube vial that she calls "the resulter"

i'm playing with her, right, so i'm like, awesome, what are the results of Piggy's blood test? and she says "we have to send it to the scientists." so we send the vial to the scientists (put it in her bedroom) and when we get back to the vet playset i'm like awesome what did the scientists say? and she says they have not gotten back to us yet

so she rolls her eyes, exasperated, and says we have to call the scientists. she pretends to call them. apparently, they tell her that Piggy's blood test is "at the bottom of the list" and "we have to WAIT." she frowns. we wait a bit longer and call them back. they tell us it will be a while! she says we should go ask the scientists in person so we go back to her bedroom and she inquires at this imaginary lab, at which point the scientists yell at her and tell her now they will make us wait even longer!

keep in mind she is 100% directing this play. she is making all this up. she is fully in control of this game, and she has decided that what we are going to pretend is that we are dealing with this exhausting nonsense, not actually treating Piggy.

finally the blood tests come back. they are inconclusive. the scientists do not know what is wrong with Piggy. the little girl walks back to the stuffed pig on the exam table, sighs deeply, and says in a very serious voice "we can never help you."

i'm obsessed with this kid. when given complete control over a make believe scenario, instead of becoming the heroic rescuer administering effective cures, she is instead a beleaguered vet making multiple calls to an overworked lab only to be left unable to help her patient.