Chronic Polaroids

“Kitten has the softest paws”

“Trying to play hide and seek with my dog, but she gets just TOO EXCITED when I spot her lol”

Deer and cherry blossoms in Nara park, Japan

When he asked me what I did with my days at the moment, I explained the current situation (which is that I’m unemployed, out of education, and mostly housebound), and told him that I really wasn’t busy at all. I tried to play it off as a joke, like I always do, but he seemed to take it seriously. 

He said: “It sounds to me like you’re very busy, you’re just busy taking care of things that most people don’t have to worry about.” 

And that’s true. I don’t really get to think about it like that, because I’ve been told over and over again by people in my life that I just need to “try harder, do more, be busy” until everything just sort of… works itself out. But I am busy - I have to keep myself distracted to deal with psychotic symptoms that I currently don’t have any medication for, I have to spend a lot of time resting so I’m not in as much pain and have the energy to do what I need to do, it takes me significantly longer (and more effort) to do basic self-care tasks and chores… The list goes on. 

I can finally share my piece for Cause and Effect Magazine on what it’s like to live with #mecfs. Issue 2 (with my piece) now available.