Husk Bateman

Wheezing for half an hour because someone wanted me to do a "simple" task well beyond my limits :)))))

This is a fast moving world. Friends and appointments and deadlines and opportunities pass by so quickly. How can the CFS/ME haver take those opportunities when they can hardly get out of bed? How can a slow body survive in a fast moving world?

I don't think enough attention is given to how disabilities close off so many paths in life. Not only in careers, mind you, though a disabled person will naturally have a harder time finding employment. You miss out on certain sports. You miss out on locations that aren't accomodating. You miss out on positions because others will hesitate to hand you responsibility or power. You miss out on such a large chunk of life.

Today I woke up

I'm often too tired to bathe, which makes sleeping more uncomfortable than it already is :(

MECFS hides stamina in a strange way. I will often feel perfectly fine, but one look at my heartbeat monitor (or just stopping what I'm doing and taking a break) will reveal my fatigue. This pushes me to do things that seem barely above-baseline, and said things end up being very much outside the capacity of my stamina reserves.

It's ironic, MY life has been ruined by ME! It's all ME! Overwhelming me with ME!

I'm too tired for this