Craniofacial Vegan Diaries: Treacher Collins

Women like me with #craniofacial disabilities are rarely represented in media beauty campaigns. 💋 Please support the DOVE campaign. Lets show everyone that our differences are beautiful too! #metoo #timesup #showus that #mydifferenceisbeautiful

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I have a #DISABILITY, that nearly defeated me because I was on the SAD #diet. I was #malnourished and on 14 daily prescription #drugs. I PERSEVERED and now I've been chosen to speak on reputable stages among the charitable elites at @citysummit.co. 🎗 I've accomplished this because I'm delivering a very important message of #health. I AM a living testimonial, a SURVIVOR, and YOU can be too. _ Learn our methods and download our free award-winning @assuagedapp created by our fortune 100 + 500 developer @creative27 for #organic products, #recipes, restaurants, and our personal #healing methods. INVEST in your HEALTH today and please let us know how we can be of contribution to help you. 💖🕉🌈 _ Thank you @williamburdine from SoCalCreations for capturing this phenomenal photo 📸 during my #craniofacial health #testimonial (@assuagedapp + @puriumhp) stage interview with @allisonh.larsen at @citysummit.co + @citygala with our @craigandjennyd #ThriveTribe. 💖 https://www.instagram.com/p/Bs8l1dmlKHj/?utm_source=ig_tumblr_share&igshid=y8tpn9cwr5js

The Cosico's young daughter Elyse was born with a rare #craniofacial condition called Apert Syndrome. The syndrome is characterized by abnormal skull development, fused fingers and toes, and some facial deformities. Elyse faces multiple hospitalizations and surgeries, and will be the recipient of this year’s “Taste of Union” event to be held on Thursday, April 19. The “Taste of Union” annually showcases local restaurants and food vendors to benefit an individual or family in need. https://goo.gl/Kv2V6H

This may be useful information for parents with babies who have #craniofacial conditions and are in need of cranio remolding helmets. 💜 https://goo.gl/SRfxwB

I've been studying the psychology of our conditions and have written several research papers. This is taken from my paper "The Psychological Impact of Children born with Craniofacial Abnormalities." Awhile back, I showed this paper to Dr. Lee, a reputable #craniofacial doctor at UCLA. She has a beautiful heart and she's always inspired me to share my knowledge with others. My husband is studying for a Bachelor's in Nutrition, which we'll be educating others about as well. Our studies were graded by accredited educational institutions. If you have any requests, please let us know!

Are you looking for a stress-free and kid-friendly #recipe? Try Craig and Jenny D's delicious Creamy Coconut Rice perfect for Busy Moms! http://bit.ly/2EPNwIF

My friend Christina Stramac was featured on the news following her successful book publication "It's Chychxn!" This book provides a raw, candidly detailed journey of a young woman’s heart wrenching struggle with Treacher Collins Syndrome and the 50% chance of potentially passing on the #craniofacial difference to her unborn children. It is not what society’s judgments will be—she has contended with that for a long time. Watch CTV Windsor News video http://bit.ly/2Fuvt7P and visit her website: http://bit.ly/2zyoG8I

BRAVO Jacque Rodriguez, you're an inspiration to all of us! While looks can be deceiving, this remarkable young lady is changing the face of #craniofacial conditions and combating the stigma. VIDEO: https://youtu.be/wCAeWlRKHeIJacque is near a college graduate at the age 16. I met her in San Jose on 9/25/2016, during our charity event, which led to both of our awareness films. Life takes you to unexpected places and brings you many blessings. Thank you, Barcroft TV for your tireless efforts in undertaking the many ongoing craniofacial stories for the 'Born Different' awareness series and for displaying our messages across so beautifully. MEMORIES: http://bit.ly/2AD5w21

Julia has Crouzon Syndrome, a #craniofacial disorder. What an vibrant girl with a beautiful heart! https://youtu.be/52NaSC9IHKE

Grandmother Wiang Boonmee, 63 from Thailand has a rare #craniofacial disorder that caused her to go blind. This condition causes facial growths known as Neurofibromatosis. She is refusing surgery because she fears she might die on the operating table. 😟 http://dailym.ai/2sCrzqW

Nutrition is an important part of leading a healthy lifestyle. It is especially important for those who have chronic illnesses and physical #disabilities, including #craniofacial conditions. Try Craig and Jenny D's easy and hearty 6-ingredient vegan recipe ➡️ Organic Spaghetti Squash Pasta with Spiralized Zucchini! 💟 FULL RECIPE: https://goo.gl/jzK3XJ

INSPIRING but SAD: How many can relate to the experiences of social isolation? Disability activist Lili Rachel Smith was born with Apert's syndrome, a #craniofacial condition. She had the friendship and admiration of some of the nation's top political leaders. Lili became socially isolated during her middle school years and then died of medical complications. A few local teens began speaking about social isolation, leading to the first small group of Beyond Differences founded by Lili's parents. Watch her story via YouTube: https://youtu.be/vXkfpR5wO-k News story via Vindy: https://goo.gl/7oZFeK and SF NEWS: https://goo.gl/Tme587

Patrick Bruns was born with Apert Syndrome, a #craniofacial disorder that involves malformations of the hand and feet. He lives a full life, but there are a number of challenges that come with his condition involving significant breathing issues and choking. After careful consideration, Patrick and his family agreed to go forward with a risky but life-changing surgery. The goal is to move Patrick’s face forward about one millimeter a day so he isn’t expected to be fully healed for another few weeks until it reaches 25 millimeters. http://bit.ly/2HwJCC8

Latrea Wyche is a beautiful and educated woman who was born with Pfeiffer Syndrome, a #craniofacial disorder. We've been FB friends for well over a year. Her story is amazingly compelling and relatable. Some of us come from broken homes but persevered. Reading her life experiences and accomplishments pulled my heartstrings and made my eyes swell. I feel privileged to have met this courageous and massively inspiring woman. http://bit.ly/2G9Ohbv

Louis Legend, is a 2-year-old with Treacher Collins Syndrome, a #craniofacial disorder. He has become a model for Lulas Dudes & Dolls to help raise awareness about his condition! http://bbc.in/2Hkco8P

Warren Armstrong is an adorable courageous young boy who was born with Moebius syndrome, a #craniofacial condition that affects the cranial nerves in the face. He was also born with malformed hands requiring surgery when he turns two years old. This disorder can also involve dental conditions, breathing issues, visual impairments, sleep problems, and weak upper bodies. http://dailym.ai/2EMiaSc