i am… healed
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he wasn't even looking at me and he found me
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@chronicillnesscat
i am… healed

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Having Ehlers Danlos Syndrome sometimes feels about the equivalent of being composed of jello and wet spaghetti. Nothing stays where its supposed to. Literally every single cell in the body is floppy, so fingers are definitely an issue for many of us. I can almost guarantee that for the majority of us, writing is not only slow and painful but nearly impossible at times. FIne motor skills? What even are those? An EDSer surely doesn’t have any of those. Even typing which is far easier than writing, is painful and daunting at times. But last year I joined the population of shiny zebras by getting fitted for a set of Silver Rings Splints and they are beyond magical.
For those of you who have not heard of The Silver Ring Splint Company, they are a company that custom makes finger splints that look like elegant pieces of jewelry. Don’t believe me? Well I can’t even tell you how many compliments I’ve received for them. Nobody even suspects that they might possibly be medical. But more importantly, they work amazing! I still have hand pain and finger dislocations when performing fine motor skills and writing is definitely not something I look forward to but I have saved myself thousands of painful dislocations, I can open doors easier, type faster, write longer and hold objects in my hands without looking like an alien from a sic-fi movie. With the rings on my fingers actually look like fingers rather than tentacles!
The company is also family owned and the people are so sweet and helpful!
If you are having trouble with hand pain, clumsiness and dislocations please check out this amazing company!
http://www.silverringsplint.com
I’m literally crying right now. I will be able to use my hands!!! As it stands I can’t do dishes, hold things, write, hold books, type, without pain or dislocation. Oh my gosh. This is a miracle.
@peaceypanic
those are gorgeous and that is amazing how well they’re working! signal boost!
I love these things. I use one for my thumb because due to arthritis I have very little strength/support in the joint and therefore often can’t do anything. My splint makes it possible for me to do my job, do the shit i need to do and not have as bad of pain.
these are so cool
omg the first ehlers danlos post I’ve seen, this makes me happy!
When you have a sudden burst of energy:
[cracker kit advertisement says it contains a “convenient spoon”]
[girl wearing a red shirt that reads “i don’t know what is wrong with me but i can name several prescription medications that haven’t helped”]
me: *just chilin*
brain: hey guess what
me: what
brain: sudden overwhelming sadness, that's what
me:
me, softly: come on, man

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Are there any things other than the spoon theory we can use to manage our energy?
Yes! I hope these are the kind of answers you’re looking for:
1. Know your limits. Learn what your body needs.This first one is basically the Spoon Theory again. Take it easy, don’t do everything at once and break errands down bit by bit. Accept that it’s okay that you can’t do everything in one day, or even anything some days.
2. Get good sleep. This is a tough one for a lot of us. If you’re able to, get to a doctor and maybe try some medication. It’s okay to need medication for things. Figure out if you’re a short, average, or long sleeper and set your morning alarm accordingly. Try to get to bed and get up at the same time every day, but if you need to keep sleeping that’s okay. Do your best not to do anything in bed besides sleep (or fuck). That way your body knows bedtime is bedtime. If you need to read to get to sleep, or watch tv, or use your phone, do that in a comfy chair somewhere else and go to bed when you feel like you can sleep. Practice progressive muscle relaxation, or yoga, or meditation to help relax before bed. Try drinking sleepytime/chamomile/decaf tea before bed.
3. Eat well. Can be another tough one. For those of us who skip breakfast, it’s definitely worth it to make an effort to eat in the morning. Try to eat at least two meals a day, and make sure you’re getting protein, carbs, and sugar in some forms. A little caffeine may be alright for some of us, others should stay away. You know what’s best for you. Drink lots of water. Don’t just drink coffee in the morning and be done with it, treat your body well so it will treat you well.
4.Have a support system. If your friends and family don’t understand you have different limits than they do, they need a wake up call. Unfortunately this is something people don’t have a lot of control over. A lot of people can be isolated or come from a bad family situation. But if you have people who will understand, talk to them about what you need. Ask for help. It’s okay to need help. If you’re financially able, maybe think about trying to find a psychologist to talk to when things are rough. Keep in mind you might need to go through a handful before you find the right fit. If you don’t have any of those options, keep a journal or start channeling that stressed, depressed, and anxious energy into art. Write, draw, paint, do whatever you can. It doesn’t matter if you’ve had any experience here. The point of this is not to publish a book, it’s to let go of thoughts. If you’re not artistic, find another hobby; bird-watching, putting puzzles together, playing Sudoku, cooking, cleaning. Having a support system or a way to let go of stress can really help energy levels.
5. Take breaks. Don’t run yourself into the ground. Have days for just hanging around the house or in bed. Take a walk (or roll), or just sit outside for a little bit. That vitamin D does wonders. If you can, treat yourself to a massage, or have a partner give you one. Take a hot bath. Light some relaxing candles. Don’t think about school or work or drama all day. It’s your rest day, so rest. Remember that you are human and it’s okay to need more rest than other people, or more help than other people. It doesn’t make you weak or a burden. I know I can feel guilty for needing things sometimes, and other people can make me feel guilty about me needing things, and if I don’t stress about that and I just focus on dealing with my body I don’t feel as worn out.
These aren’t new or revolutionary ideas, but it’s all I can think will help, anon.
Looking for the right pill bottle like
[Gif is of a person going through their spice cabinet and knocking a bunch of the spices out.]
boom crack the sound of my joints
“The only disability in life is a bad attitude!”
Are you sure?
Like are you REALLY sure?
This person was really dedicated to making that point.
You don’t know the half of it.
This was the third take.
The other two…..did not………….end………………………..well.
Fictional doctors: this patient has a medical mystery and is suffering and we can't solve it, we need to invest more time, effort and resources in figuring out what's wrong and helping this patient live a happy life
Real doctors: idk what's wrong so im going to assume you're faking lol good luck

Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
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me: *does literally one thing*
me:
Damn depression back at it again with the anxiety
Well this happened…
this app is truly amazing

Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
Free to watch • No registration required • HD streaming
when u stand up 2 fast n suddenly ur floatin thru space n time
*forgets what I just said while it’s still coming out of my mouth*