Angry Sheep/ Supportive Doggo

Captions cover the spot on the screen you put the information I need

The dialogue is captioned but not the song you have playing that the dialogue is responding to

You only captioned the person on the screen, not the person off screen who is also talking

No captioning of critical sound effects (alarms, bells, dogs barking, etc)

Speakers are not labelled at moments where it is not clear on the screen who is talking.

Captions cover the spot on the screen that you put the information I need!

Other d/Deaf people welcome to add.

if you are in pain within minutes or seconds, that is not normal. that is a Symptom. poke your doctor into finding out what it is or connect with disabled and chronic pain groups.

if you are in extreme pain, not just "ugh my feet ache" pain but "i am going to pass out" pain, that is not normal. that is a Symptom. poke your doctor into finding out what it is or connect with disabled and chronic pain groups.

I mean, I can walk just fine, but standing in one spot for like 15 to 20 minutes will leave me in pain for days.

So that didn’t help

Meanwhile document the actual effect the pain/etc has on your life. Document how it impacts your ability to cook; your ability to clean; your ability to clean yourself; your ability to sleep; your ability to work; document all attempts to be more active and how the pain interferes with them. If you have to do something other than just go stand in the kitchen for ~1hr to cook a meal, that's something to write down; if you have to choose not to have a shower because it'll hurt, write that down. If the pain prevents you from going for a walk, write that down.

Every single time you make a decision about what you're doing based on the pain, you document that; every time you have to endure the pain for a necessary activity which then impacts what ELSE you can do, write that down too, with a direct connection.

(Warning: this will probably be depressing as all fuck and you will probably hate it. You are almost certainly ignoring the impact of pain on you way more than you think you are, and having to face it will feel bad in the short run. Very bad.)

And then you bring it either to your new doctor or if you MUST, to your current doctor, and you say: this is how the pain currently affects my quality of life. This is what I would be doing if I weren't prevented from doing it because of the pain.

Say that you would like to find the reason for this pain and you would like them to order relevant diagnostic tests. If they refuse, or hem and haw, ask them to document clearly in your records that you requested this and both that they refuse and their reasons for refusing.

If you must deal with the same doctor, document the concerns you have with the weight-loss drugs, and ask your doctor to be explicit about why she thinks that these risks are worth something that does not directly address your actual concerns. Ask why this is their first line treatment for the rest of what you've described, and why they are more concerned with pushing an overprescribed treatment than actually investigating the cause of your pain and addressing it appropriately based on an evidence-based diagnosis.

Disability is not a competition.

Suffering is not a competition.

Many of us will be unhappy with our disabilities.

Show compassion to those grieving what they lost due to acquired or progressing disabilities.

㋡🥀

Breanne Kuffner said she’s devastated after the province announced changes to the Assured Income for the Severely Handicapped (AISH) program. “I am so scared. I have cried so much,” said Kuffner, who has POTS, hypermobile Ehlers–Danlos syndrome, reactive hypoglycemia and endometriosis. She needs an IV every few days. Kuffner said she was excited when the federal government introduced the Canada Disability Benefit earlier this year, which provides $200 a month for low income Canadians with disabilities.

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The province plans to move AISH recipients to a new program on July 1, which disability advocates say will mean a $200 monthly reduction in income. CBC Calgary asked Smith's office how many people have moved to Alberta to access AISH, but did not receive an answer by press time. Some disability advocates in Alberta are looking for clarity after Premier Danielle Smith said she wants to ensure people aren't moving to the province just to use its social programs. On Thursday, Smith said her government wants to ensure social supports aren't "overly generous" so people don't move to Alberta to take advantage of them. She said the province doesn't want to inadvertently create an incentive for people to move to Alberta to seek out the highest benefit. She argued this was a reason why Alberta included tighter eligibility requirements for seniors' benefits in last week's provincial budget, and why Alberta plans to make changes to its Assured Income for the Severely Handicapped (AISH) program.

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