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@beppilepsy

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People with epilepsy had a higher risk of being hospitalised with COVID and of dying from COVID during the first 15 months of the pandemic,
Official validation for staying inside for two years like I had died at the beginning and was doomed to haunt just this small patch of property. I knew I wasnât at a greater risk of catching it, but I knew I was in for a bad time if I ever did. (STILL an official Covid virgin btw, 5 vaccinations strong)
All these studies lately are just confirming things I was pretty sure were true, and thatâs great and everything cuz it makes me feel smart, but I canât remember the last time I read a âpeople with epilepsy are more likely to xâ and I was like âwell Iâll be god damned, I never thought of that, but sure enough!â I need one of those every once in a while to keep things exciting.
Waking up from VNS Battery Surgery
Anesthesiologist: you had a pretty good seizure after we put you under
Me in my head: well ya turned off my device, didntcha?!? Also what in the ever loving FUCK is a ďżźâpretty good seizure?â
Me out loud: likkkkke whatrewetalkin fiveminutesten??? K nobig donttellmymom
ââââ
Me: *watching TNG in the recovery room*
Young nurse: Heh. Old school.
Me:
https://www.physiciansweekly.com/nearly-50-of-those-with-new-onset-epilepsy-have-comorbid-mood-anxiety-disorders/
You rang?
Happy 100th post to me, I guess! Coulda sworn I hit that mark a while ago. Do they not count reposts?
So anyway itâs been a minute! Just checking in to say Iâm alive and officially t-minus six weeks from getting a fancy new VNS battery. The current battery (pun intended) is at 9% and it gives me phone-type anxiety lmao. The new model also monitors your heart rate and sends you a little âcalm downâ signal, similar to running the magnet across the older model, if your heart rate makes a fast, significant change.
I promise to TRY not to come back assimilated with Borg nanobots, but if I do, just remember what they say about resistance. đ

Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
Free to watch ⢠No registration required ⢠HD streaming
Abled bodied people will just never understand how difficult it is to be vertical sometimes. Like I don't mean just standing, but sitting upright too. The longer I can't lay in my bed with my legs horizontal, and back supported on a gentle incline, the worse the pain and the longer it takes to recover.
They only allow one video per post. What even is up with that? Itâs 20 fucking 22. I should be able to show you two or three cute things my pets did in one post. ďżźďżź
As promised, my babies.
Dilute tortie = Pippa
Void Cat = Kiddo
Pit mix = Rosie
Weenie = James Buchanan âBuckyâ Huls
Kind of a bleak Science Thursday this week. Donât worry, Iâll post a cat video or something after this.
https://www.news-medical.net/news/20220406/People-with-some-types-of-epilepsy-may-have-a-lower-quality-of-life-study-suggests.aspx?fbclid=IwAR3YdtHD6NOurL-mQBY-5OYIe9OY9XGu7zf50K9RkttN7n5WcqF_cZXE1BY
A new study suggests that people with epilepsy associated with head injuries, especially the type not well controlled by medication, are mor
On average, people with epilepsy live 10â12 years less than those who do not have the condition. Excess mortality is particularly pronounced
An abstract is unavailable.
The studyâs participants were all epilepsy patients..
This is actually pretty intriguing

Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
Free to watch ⢠No registration required ⢠HD streaming
it is not your job to sniff out âfakeâ disabled people
NEVER harass someone for using accessibility aids - such as a disabled parking space, mobility aids (wheelchair/walker/crutches/cane), a service dog, soundproof headphones, etc. - just because you think they âdonât look disabled.â
Disabled people exist at all ages, races, sizes, genders, economic classes, etc., and we all look different!! Sometimes we will not match the stereotype in your head!
Most disabled people need certain aids in some circumstances and not in others. If you see someone using an aid only part of the time, that does not mean they do not need the aid! And yes, this includes wheelchair users!!
There is no such thing as a service dog certification or registry in the United States. In the United States, if someone brings a service dog into a business and itâs not being disruptive, legally, you must allow it. You have no right to try to decide whether itâs âreallyâ a service dog, and pestering a disabled person to determine whether YOU think theyâre really disabled is harassment. If, and only if, the dog is disruptive, the establishment can ask its person to take it outside. Thatâs it.
When you try to catch âfakersâ, real disabled people suffer.
Your harassment of disabled people âjust to check theyâre not a fakerâ and your attempts to âshame fakersâ make it harder for us to exist in public. There is already so much scrutiny that comes with being disabled, and the constant hunt for âfakersâ makes it so much worse.
Add in the fact that violence isnât unheard of when someone thinks youâre âfakingâ, and the fact that disabled people literally avoid using medically necessary aids out of fear of harassment, and the whole thing becomes a very real safety concern.
The next time you want to shame someone for having a disabled parking tag you think they donât need, or for standing up out of their wheelchair, or anything else â think about whether youâre comfortable taking the chance that your harassment is going to make a real disabled person less safe.
On the tiniest chance you catch someone willing to face constant ableism for the super fun time of pretending to be disabled (assuming anyone would DO that), your scrutiny is still adding to a culture where disabled people are constantly treated with suspicion.
Leave disabled people alone â even if you donât understand our disabilities.
Re-reblogging
A procedure involving the transplant of pig brain cells has been branded ‘very promising’ for curing epilepsy, following a seemi
Squid Game Episode Four has Flashy Lights
Iâm not gonna be the flashy lights police and watch all the things, but when I come across something, Iâll post it. If youâre like me - squeamish enough not to watch Squid Game right away, but dark and ultimately bored enough to cave and watch it - you might be around episode 4: âStick to the Team.â 16 minutes in, there are flashy lights for about four obnoxious minutes. You can skip it and guess what happens during that time.
Speaking of what an amazing human being Greg Grunberg is, back in August I was really sad in the middle of the night and just straight up asked for a Cameo pick-me-up, something I usually reserve as a gift for other people (and almost exclusively from Star TREK alums, so this is a special Star Wars guy), from him. I woke up to this, and the message is universal. âYou are AMAZING and you KNOW thatâ is my mantra now.
Check out this Cameo by Greg Grunberg for Beppy Braud Huls!
CURE Epilepsy today announced they are ringing the Closing BellÂŽ at the New York Stock Exchange to kick off Epilepsy Awareness Month, which
Happy Awareness Month, yâall! Iâve been VERY out of it for a while between needing stomach surgery, having stomach surgery, and getting over stomach surgery, but Iâm back! This is why CURE is the superior charity. The epilepsy foundation is celebrating awareness month by using the remarkably tone deaf hashtag #RemoveTheFilter, which is supposed to mean âdonât be ashamed of your epilepsy, talk about it,â but weâve had Greg Grunbergâs #TalkAboutIt for years now so itâs not only redundant - my first thought was âhey, some of us need filter apps so we donât see flashy gifs,â and Steveâs was âwow, sounds a lot like an anti-mask hashtag.â đŹ

Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
Free to watch ⢠No registration required ⢠HD streaming
Just a reminder to NOT HAVE VACCINE GUILT if you have a condition that bumped you up into an earlier group. Anyone in your life who whines because you got yours and they donât have theirs yet can fuck off. Most of us were WAY more isolated over the past year. We earned this.
Wow, remember this post from when we were CLAMORING for vaccines, and now we still havenât reached herd immunity because people are assholes?
A Dell Medical School study funded by $2.5 million gift from Coleman Fung Foundation tries to shift where brain functions happen before surg
Some VERY cool stuff going on at my Alma Mater