Life With Chronic Pain

THERE'S A WAY TO BYPASS THE COMMISSION AND PEOPLE ARE ALREADY WORKING ON IT

There are 760,000 Australians on the National Disability Insurance Scheme, the system that - if they feel like it and your personalised plan says you get to have it - provides funding for everything from personal hygiene care to support workers to therapies to assistive technology. It's already very hard for disabled people to get on the NDIS, regardless of your disability. It's near impossible to access most support and equipment without being on the NDIS. And the government has announced that they want that number to drop to 600,000 in four years. 160,000 of us cut off the Scheme - and countless more denied access. This will cause deaths. People will die and people will suffer because there is no safety net. The NDIS is the only option for most of us. Even private health insurance doesn't cover most of these things. Nobody will swoop in to save us.

The bill wants to give the (non disabled!) NDIS minister basically unlimited power to cut our funding. They're already planning what they'd do with that power. What rights they'll strip from us. What dignity and freedom they'll remove to make their budget look better.

The bill wants to force people to try every treatment out there before they're allowed to be on the NDIS. Including if the treatment is literally impossible to access. There’s a lot of us living in regional areas or out bush who can't just pop to the capital cities for specialists. This will especially hurt disabled First Nations people in regional and remote communities, who already experience limited access to healthcare. Oh, and it includes chemical restraint, too. The government has directly refused to exclude chemical restraint from the required process, calling it "trialling medication".

If you're australian and worried, the ABC did a good breakdown of the proposed changes.

I know australia stuff doesn't really pop up on the radar on this site, but I want everyone to know what's going on. What we're fighting for here. Your australian disabled friends might be NDIS participants fearing for their life, rights, and freedom. They might not be a participant and afraid these changes mean they never will have access. We deserve better. The government built a system with no backup plan, and now they want hundreds of thousands of disabled people to pay the price for their bad planning.

And it pissed me off so badly that I spent the ENTIRE WORK DAY today compiling evidence from every project my team has ever done for her, pulling past emails she’d sent us, putting together an entire case proving that she had been the problem all along. That she got projects mixed up, that she’d made requests that were nonsensical, literally everything you could possibly imagine. Screenshots of emails, reports we’d submitted, EVERYTHING.

This woman in particular has been terrorizing my team for years, her name is almost a slur in my office, I had simply had ENOUGH of her.

I put all of this evidence together and sent it to all of my bosses at 4:30pm. Then I took a long break to eat a sweet treat and drink some tea.

After my break, my bosses all called in an emergency meeting with me and they said they read my report and fucking loved it. And I sat on a teams call with my boss’ boss as she wrote my nemesis the scathing email I had always fantasized about sending, using the evidence I’d compiled, and hit send.

And 3 of my favs are up for elimination. :(

I’m writing a piece on the now-extinct NH native Smooth-slender Crabgrass. I’ve already had an interviewee back out, and my deadline is 7/23/26 (yeah I know). Since this plant has been extinct for close to a century, I’m not particularly looking for someone with close experience with this specific species, but am looking for botany/ecology informed interviewees who are some combination of:

Informed on this species

Informed on endangered plants/plant extinctions generally

Is familiar with Rock Rimmon Park (Manchester NH USA) & its diverse ecosystem

Might have a personal connection to NH / northeastern USA