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UsAgainstAlzheimer’s National Alzheimer’s Summit: Don’t Miss It!

Due to COVID-19, this year’s UsAgainstAlzheimer’s National Summit is a FREE virtual experience jam packed with outstanding speakers and topics!

The event will be held Oct 19-21, and you can attend all sessions, or choose the ones that interest you the most. Registration is still open; just visit http://www.usa2summit.org to register – you don’t want to miss this fantastic conference!

Ma…

These photos taken at Eason House are some of my favorites from one of my most memorable Mother’s Days. Mom was having such a good day and I see so many glimpses of the old Marilyn in the images.  Oh how she loved her sweet treats, and she sure enjoyed her fudgsicle that day.

This morning, I sat quietly for a few minutes and felt her loving presence surrounding me…

Eight Mother’s Days without her.

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Join the 30-Day Brain Health Challenge

As someone who has been up close and personal with Alzheimer’s disease, I think about the future a lot. If you are caring for or have lost a loved one to AD or another form of dementia, you more than likely know exactly what I’m talking about. What are our odds of being diagnosed at some point in our lives and if that day should come, will there be a treatment or means to slow the progression? As…

Alzheimer’s, Thanksgiving, and Expectations

There’s one Thanksgiving that is forever etched in my mind for all the wrong reasons. Although it occurred eight years ago, in many ways, it feels like yesterday. When I think of the November holiday that I once looked so forward to, the first image that comes to mind is from 2010.

As I thought about writing this post and what tips I might offer to help you make the most of your holiday, I found…

Alzheimer’s Round Up – Nov 2018

Greetings, friends. It’s time for an Alzheimer’s Round Up. As always, thank you so much for reading. Stay tuned for some tips as you prepare for the upcoming Thanksgiving holiday.

Until then…

Be Brain Powerful

This past week, the Be Brain Powerful campaign launched in NYC. This WomenAgainstAlzheimer’scampaign aims to bring awareness to women’s brain health and “ignite a cultural transformation in…

Marilyn’s Legacy 2018 Annual Campaign

Greetings readers, friends, and Marilyn’s Legacy supporters!

Autumn is upon us, and this was always Mom’s favorite season; it’s hard to imagine that she would have turned 82 this past Friday and that December 15th will mark six years since she left us. I miss her so much. As Jess and I are just returning from a lovely trip, I am reminded of the many experiences Mom missed out on due to this…

The Longest Day: 8 Ways to Get Involved

June 21st is more than just the summer solstice. It’s The Longest Day – a time for our thoughts to be with those living with Alzheimer’s and other forms of dementia and their care partners.

It’s a day to spend doing something you love or something to honor a special person living with – or lost to – dementia… a day to raise awareness about AD, how it affects families both emotionally and…

Personhood: The True Essence Remains

Personhood. It’s important to know and always remember that the person living with dementia never loses their true essence.

All of these photos were taken during the course of our Alzheimer’s journey, some very early on and others in the final years. Although the painful moments became more frequent and lasted longer as the disease progressed, and despite the delusions, paranoia, hallucinations,…

Oh how the years go by…

Five years ago today, we celebrated my mom’s life; a very special day, that cold Saturday in January. Italian food, free-flowing wine, many dear friends and family members, love, laughter, and of course, tears. The gathering culminated in a balloon release that she would have loved.

The sight of those magnificent pearlescent purple and white balloons floating skyward literally took my breath…

Years ago, when pondering names for this blog, I chose the tagline “An Alzheimer’s Journey and Beyond.” The tagline stems from the life-altering nature of the Alzheimer’s experience and the fact that a new kind of life exploration continues long after Alzheimer’s ends. This post falls into the “and beyond” category.

As I sit ruminating on 2017, I would have to say I’m happy to put it in the past…

Five years ago, today, my mom became whole again. She found peace after a long, valiant battle against Alzheimer’s. She gained her angel wings. December 15, 2012.

I try to take this day off every year. I prefer to spend it quietly, alone or with my daughter, allowing my mind to go where it will. If tears come, let them come; I really don’t want to be distracted by the minutia of the outside…

When It’s Time to Say Goodbye

This is a piece I wrote back in 2011. It isn’t specifically about Alzheimer’s, but it is about life, a topic I’ve spent a significant amount of time ruminating on this year.

Tomorrow marks the 5th anniversary of my mom’s passing, and Christmas will mark the 6th anniversary of my dear friend’s mother’s passing. I saw “G” tonight, which is what prompted me to go back and pull this from the archives…

Alzheimer’s & Gratitude: A Matter of Perspective

A post from 2016 that seems fitting for today. Happy Thanksgiving, my friends.