the ticcerrr

a health policy paper has been published saying the name is officially updated to polyendocrine metabolic ovarian syndrome (PMOS)

polyendocrine= multiple endocrine factors

metabolic = affecting/affected by metabolism

ovarian = from the ovaries

essentially, instead of using the symptomatic term (many people with PMOS do not develop cysts) the new term widens the diagnostic area and makes it easier to diagnose, treat, and do research on people with PMOS (even atypical types, such as no cysts).

it may seem like a waste of time to change a name instead of focusing on research, but for a lot of medical professionals a name can be associated with a hard set collection of symptoms, so the name needs to change to acknowledge that the disorder is not well understood and has a broader, subtler, and often missed set of symptoms. for example ADD is considered an antiquated/unused term, and now comes under the ADHD umbrella. in healthcare names and terminology changes all the time, and this is a positive change. your local healthcare professional may not know about this unless theyre really up on the news though!

in case you want to read about the name change process that was published in the Lancet (one of the most impactful and well respected medical journals):

I hope everyone is okay. Take frequent breaks, block words and others, do frequent self care, invest in setting up and adding more things to accommodate yourself, make time for yourself.

Speak to your professional/neurologist some will be able to give you a medical card, some may be able set up an accommodation where your dr can accommodate you through phone.

Printing them out is still valid especially if you need to edit your needs and around your tics, tics change and come and go, it’s likely that we may need to change our cards anyways. Tourette’s organizations usually has a card to print out. In Tourette’s association of America they have English and Spanish. There’s one for those without coprophenomena tics and there’s one for those who have coprophenomena tics. But they are not customizable, they’re already written out for you.

Amazon has almost everything, here you can customize your card.

Hidden disability sunflower has space to personalize your medical card. They’re still spreading the word, but the sunflower means hidden disability, some places are aware of it, some are not, their websites allows you to lookup places who has the hidden disability sunflower logo.

Here is their first page, it links to other places you’re at. Once you’ve found your country go to main menu (☰), click on “The Sunflower”, scroll until you’ve found “Sunflower cards”, I’m not sure how the digital one works but once you’ve customized your card you’re set to go! There are some already set up and you can edit the rest, if you’re unsure what to write or don’t have excessive energy to write a lot.

They have so much to look through.

~~ Homemade ~~

~ Printing ~

Find a card size [ 3.375” x 2.125” (85.6mm x 54mm) ], write out your condition, after printing you can tape it (to make it more sturdy) or slide it in a clear card.

You can customize it to however you’d like, but you need to make sure your needs and condition is readable, has basic information and specific needs.

You can buy the sunflower landyard or look through your shops to find one you like or feel is suitable. Or you can keep it in your wallet.

If you feel your tics are too active, going to be in a space where it can trigger coprophenomena/oppositional tics (rude phrases, throwing tics, spitting tics, pulling your mask off as a tic, screaming tics, writing tics, etc.) or have times where your tics may accidentally break or hit someone - such as your arms or legs stretching out. I recommend having easy access to pull it out or wearing it.

I have two, but I’m going to upgrade it, so far one is Batman and the other is the sunflower. I printed out the TAA medical card, but I am looking to upgrade it. My area isn’t aware of the sunflower, but it’s one way to spread awareness whenever I wear it.