On this day in 2009, Freja was 4 days old and had just spent her first 24 hours on the neonatal unit at Nottingham Queens med. it was a terrifying 24 hours. What was wrong with my perfect little baby? Was she going to be ok? The first time I visited her, wheeled down to the unit in a chair by her daddy, and seeing my tiny, beautiful little baby lying stripped to her nappy and covered in wires in an incubator, I cried. A lot. Just hours before we were getting ready to go home. She'd just met family and friends. It all seemed so perfect. Now I had been thrown into this scary reality that still felt so dream like, like an out of body experience. I was in denial that could be my baby. As we stood there looking in at our little girl, machines started to beep. Alarms went off on the machines that surrounded her. She turned blue. Doctors and nurses rushed in, opened the incubator up and started to give my baby oxygen. I was convinced in that moment she was going to die. I had barely met this tiny human I had spent 9 months protecting, and now, when she needed protecting and helping most, I was useless. All I could do was stand at the side and weep. Post natal depression would follow, and thoughts I had scared me - I couldn't get too close to her, I was convinced she'd break my heart and I'd loose my baby. I was even convinced it was somehow my fault. I was scared of this fragile little human that I just wanted to protect. I wanted it all to go away for her. I was scared she was in pain. Weeks of tests and monitoring wouldn't actually reveal much, and we still have no idea of why this has happened to our perfect girl, but what I do know is that the journey both Freja and I (and the family) have been on is an extraordinary one. It's taught me a lot about myself and who I am as a mother in a different way to what Jude and Dexter have shown me in their own uniqueness. I know Freja will never give up, and I will never give up on Freja. So I got this quote tattooed a few years ago, as permanent on me as my love and my fight for her. #mumlife #mum #proudmum #kidswithdisabilities #writersofinstagram #writermum #disabilityawareness #shakespeare