#tremfya

I have psoriasis, psoriatic arthritis, and hydradenitis. I’ve been taking Cosentyx, but I’ve been sick more than I’ve been well: oral thrush like every 6 weeks and getting increasingly more painful and difficult to treat. I am *hopefully* switching to Tremfya. 

I’m looking for people on biologics for auto-immune stuff. 

Are you worried about Covid-19? Do you feel like there is enough research to not be more concerned than the ‘average’ person? Do you have comorbities? 

I am having massive anxiety because my employer is calling us all back in but my job requires me to break CDC guidelines for things. I have a doctor’s appointment this week to fill out the form for HR to let me continue doing what I’ve been doing which has worked just fine for my department. My doctor wrote a note back in July saying I need to stay telecommuting for the duration of Covid-19, but now I’m stressed out that the person I see this week won’t fill out the form even though I am in the risk group for obesity, my immune system doesn’t work properly, the drugs put me in the ‘may weaken immune system’ group, I don’t sleep well (the doc should see that in my chart) which also lowers the immune system, I don’t eat well which is my own problem, growing up - if something was going around, I got it - and I have been sick since March with sinus infections, ear infections, colds, oral thrush, other mouth bacterial issues, my anxiety baseline is at a 7/10, and I am terrified. 

My regular nurse practitioner left; I’ve seen this one once; this one is different from who wrote my first letter in July. A teledoc, former transplant doctor, said I am immune compromised. But I feel like some say I am, some say I’m not, and it’s not worth the risk when the data is so unclear. 

I need validation. I need to know that I am not overreacting. 

So my doctors sent in a different injector type, pen versus one press. The pen I used before was fine, I'm guessing they don't know the difference, neither do I, because they sound the same.

But it means I'm not approved to continue with my meds, tremfya. Emgality was approved for a year.

So that's nice.

But if I miss the starter dose for my tremfya I have to start all over again. The doctor's office didn't like me calling after acaria called me first before the doctor's office.

The doctor's office kept saying it was me who changed it, didn't. As I have no way to do that. Were annoyed that I called about this issue, which for me is a they did it issue & or the insurance. No idea what's going on & why it happened, on my side. But I did everything, as per the person (just the tonality & phrasing not from her) on the phone I was talking with, to have done this to them & at all.

Anyways, now no more tremfya, I guess? 🤷

I changed nothing & did nothing so someone or something is screwing up here. Or whatever in terms of mistakes were made you want to call it.

I left a message after talking to my doctor's office about what was said to me, making sure the correct phrasing was used & what was stated to me from the pharmacy was restated in the message. In writing. A text message thingy in a web browser thing called klara.

They rarely ever say anything back, but they have indicated they actually check it. I don't know what's going on with hamblin dermatology, but Emily was the one who helped out the most on this & did back & forth for about a month to get one starter dose, of 2, going for me & now I might miss the second.

Asked about the sample thing for my next appointment, let's see if they call me back like they said they would.

Oh, I have to move things around in my apartment today to get it ready for a new ac unit install. My dad is going to help me, my neck & back are still in decent pain but I nearly choked swallowing down a single 500 capsule of acetaminophen.

Day started.

Let's gooooo!

Literally the first time in my life I have ever scrolled YouTube Shorts, and this comes on about three videos in. Thought I had a stroke and suddenly couldn’t read.

I know it’s only temporary (a few days after I take my dose) and it’s not as bad my joint pain without the meds but seriously - it’s annoying.

(With my tremfya it’s like an achy feeling that, unlike arthritis, I can’t walk off. Not bad enough to keep me from doing stuff or keep me awake but… annoying.)