#sicklecellmn

To watch your child endure things outside of your control is a tough pill to swallow. It’s innate for parents to want to take away any trouble be it heart ache, pain or whatever may be ailing the child. To not be able to that, and sometimes only possessing enough energy to take care of their child and nothing else is super trying. But at the end of the day, the option of giving up is non-existent! Being a parent of a child with a chronic illness means countless amounts of sleepless nights, prayers for healing, advocacy and education! But I firmly believe that God knew what He was doing when He gave us our warriors! I have met some of the most amazing mothers that I can only dream of being like within the sickle cell community. This goes for both the mothers of sickle cell warriors and sickle cell warriors who are moms themselves. You all are amazing and I am here to tell you, you are motivating more people than you could ever imagine #SickleCellAwareness #SickleStrong #CureSCD #SickleCellMatters #SickleCellMN https://www.instagram.com/p/CFDyyYfD61z/?igshid=1chn52ngmbu53

Sickle Cell Warrior: One who was born into a life that they did not ask for, yet perseveres, in spite of the indescribable pain of the disease and the subsequent challenges associated with seeking compassionate care and relief from the very disease that threatens to forever break them mentally. physically, and spiritually. ~Rae Blaylark, In My Own Words #SickleCellMN #SickleCellWarror #SickleCellHurts #ConquerSCD #SickleCellIsGlobal #CureSickleCell #SickleCellAwareness #2020 https://www.instagram.com/p/CFDlLnCDdgB/?igshid=170warv3i4r6q

Avascular necrosis (AVN), in individuals with sickle cell disease, results from the temporary or permanent loss of blood supply to the bone in the hip or shoulder joint. This loss of blood causes narrowing of the joint and collapse of the bone. AVN can affect a single joint or more than one joint at the same time. #SickleCellAwareness #SickleStrong #SickleSmart #SickleCellMN #kNOwSickleCell #2020 More info at: https://www.stjude.org/treatment/patient-resources/caregiver-resources/patient-family-education-sheets/hematology/avascular-necrosis-and-sickle-cell-disease.html https://www.instagram.com/p/CFDR8drj239/?igshid=1mtfy15pqirvd

Sickle Cell Foundation of Minnesota would like to wish a HAPPY FATHER'S DAY to all the warrior dads out there! We love you, we appreciate you. We will ALWAYS need you! #WarriorDadsMatter #FathersDay #SickleCellMN (at Minneapolis, Minnesota) https://www.instagram.com/p/CBtDTvPjroZ/?igshid=1cbx6zdvsirmc

Update: Mon Feb. 4, 2020 After several days of serious complications and excruciating pain, today Trey recieved his very first red blood cell exchange, removing virtually ALL of the sickled red blood cells in his body (the big long bag) and replacing them with 8 units of fresh, healthy, and safe blood through a process called apheresis. We continue to stand on God's word as we pray and believe for a miraculous healing in the mighty and matchless name of Jesus! Thank you to each and every prayer warrior, family member and friend who has continued to support us during this challenging time. #SickleCellSucks #ItTakesAVillage #PrayerWorks #SickleCellMN #HaveFaith #BeBrave #StayStrong #TrustGod https://www.instagram.com/p/B8JbgRAApZP/?igshid=ic0485vs4qun

The cold weather months have arrived and many #SickleCell #warrior families in colder climates begin to think about moving someplace warmer for the sake of their or their child's health. Being in Minnesota, we definitely understand this challenge. If you choose to move to a warmer climate, please be sure that wherever you may choose to go has adequate knowledge of sickle cell disease and compassionate medical providers in the clinics, hospitals and the EDs. It probably won't be perfect, but it shouldn't be sub standard care either. Whenever possible, find the sickle cell community organization(s) in the area, speak with other sickle cell families in the area, and get referrals to good doctors and clinics who have a reputation for good care. #SickleCellMN #kNOwSickleCell #SickleSmart #ConquerSCD #CureSCD https://www.instagram.com/p/B5eD_eMgpqB/?igshid=wmazdzov2izv

The cold weather months have arrived and many #SickleCell #warrior families in colder climates begin to think about moving someplace warmer for the sake of their or their child's health. Being in Minnesota, we definitely understand this challenge. If you choose to move to a warmer climate, please be sure that wherever you may choose to go has adequate knowledge of sickle cell disease and compassionate medical providers in the clinics, hospitals and the EDs. It probably won't be perfect, but it shouldn't be sub standard care either. Whenever possible, find the sickle cell community organization(s) in the area, speak with other sickle cell families in the area, and get referrals to good doctors and clinics who have a reputation for good care. #SickleCellMN #kNOwSickleCell #SickleSmart #ConquerSCD #CureSCD https://www.instagram.com/p/B5eD_eMgpqB/?igshid=mixe95w49daz

47th Annual Sickle Cell Disease Association of America National Convention...One of our favorite annual conferences! #SickleCellMN #CureSCD #2019scdaannualmeeting https://www.instagram.com/p/B3cA5dNAX2I/?igshid=rbb978ikocmr