I got denied SSI again. (This is after trying for around 3 years now.)
My rant (that I had on discord and now posting here because I’m just so so sad):
Do they think I want to be home all day playing video games, drawing, browsing the internet, being lazy??? Because boy that is NOT what I’m doing.
I take on average 10 pills at night (not including doubles) and 6 pills in the morning. I also have to take zofran and bentyl almost DAILY because of how abrasive my medications are on my stomach. I’m nauseous almost 24/7. My stomach pain on top of it is astronomical. But I wing it most of the time cause I don’t wanna overdo it on pills.
My bone and muscle pain is, on normal scales, probably disgustingly high. I take ibuprofen 1000mg here and there when the pain is bad and a meloxicam when it’s really bad. Again I don’t overdo it because too much medicine. I can’t have anything higher because I’ll get gastritis.
I’m bed bound almost every day because of severe exhaustion and pain.
My disability/conditions list is 21+ and continually growing. (This is not including any allergies and things I am still working towards getting diagnosed for because of how long it takes for things to happen in the medical system lol)
But they think I can work right? Here’s the funny part. I WISH I could be out there doing schooling for my dream job or even be DOING my dream job. Heck I wish I could work at all???? Being stuck in bed all day like this is terrible???? 😞 Do they think this is fun for me???
Do they think me trying this hard for the minuscule amount SSI gives rather than an actual job is what I want? NO!!! But I do need SOMETHING to live!! Yet here I am losing SSI and now my food benefits because they want me to work too or get SSI. And because they both deemed I’m somehow not disabled enough. I get neither now. Fascinating.
