👩🏻⚕️ Friday, October 24, 2025:
That day I had an appointment with a general practitioner simply to renew a prescription, and it’s crazy how, when it’s not a specialist, some doctors know absolutely nothing and start saying complete nonsense… (I’ll talk about it in more detail on YouTube, as usual).
I know that general practitioners aren’t meant to know everything, especially when it comes to rare diseases, but unfortunately this kind of situation contributes massively to diagnostic wandering. For example, at the very beginning of my gastroparesis, I quickly went to see my GP and she couldn’t have cared less about trying to figure out what I had… Of course, not all of them are like that, but I’ve encountered far too many who are.
You know, many of you tell me that, based on my symptoms, I probably suffer from MCAS (mast cell activation syndrome/ SAMA in French). I’ve also noticed that a lot of people with gastroparesis also have MCAS. So I brought it up with this doctor during the appointment, and she had absolutely no idea what it was: she had never even heard of it. She even confused it with MAS (which is a condition requiring intensive care treatment, so absolutely nothing to do with it!!). She was looking it up on the computer and dared to say that it was exactly the same thing?! Am I dreaming?! And after that, she dares to be a doctor… honestly, it’s scary…
And since she knew nothing about it, you know what her response was?!: you need to exercise and take vitamin D… 🤦🏻♀️ (even though it has absolutely nothing to do with it, and on top of that too much physical effort causes me extreme fatigue, and I already take vitamin D every day along with other vitamins…).
She also tried to see whether I might be depressed so she could pull out the classic line: “it’s all in your head.”
The problem is that to see specialists, you often need to be referred by a doctor. But if doctors don’t know anything and underestimate everything, what are you supposed to do in those cases? 🤦🏻♀️














