Hi! My name is Rem / Pixiel. Some of you might already know me as the person who made the first Old Tumblr fix after the layout change! I haven't talked too much about myself online, so for those of you who don't know me let me talk about my health a little bit;
I have Hypermobile-Ehlers Danlos Syndrome, Arrhythmia, A floppy heart valve, balance issues, Suspected POTs & MCAS - and a myriad of other smaller comorbidities to go with it. I have daily pain in my wrists, hands, knees, neck, shoulders and hips. Basically all over my body! I tire easily due to my heart problem and have to take extra care not to injure myself.
I’m currently someone who uses a cane (a really fab looking one!) but while it helps me get around the house and to and from the shop a few doors down the road - going beyond that around town often results in me having a lot of pain in my hips and knees, usually leaving me unable to do anything for the next couple of weeks - struggling to move around the house and get things done due to the pain.
This is something I’ve put off for a long time, but I think it’s time I got a wheelchair. Unfortunately, as I am on benefits barely covering the cost of living, this is not something I can afford on my own; especially now that the government is trying to change the rules and make it more difficult for disabled people to afford anything or put us on vouchers.
I need a wheelchair that is light enough for me to move and fold, one that isn't too bulky, as my rented house is not wheelchair accessible - as well as being a powered chair, as with my wrist pain I'd unlikely be able to use a manual chair without injury. After doing my own research I really love the idea of the "Monarch Carbon Lite Powerchair" though I'm currently working with a mobility provider to find the perfect chair for me!
If you can help me pay towards my new Wheelchair I will be incredibly thankful! Please share and help me be able to afford it - so I can go out and about and live my life without injury and pain holding me back!
