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Hey guys
I just started my first day off the pill for the first time in 7 and 1/2 years. I started to take birth control pills since i was almost 17 because of pcos and i have finally decided to stop because i am scared of the clot sideeffect that may happen
I did some research and i am trying my best to stick to a gluten and dairy free diet while still eating well and gently exercising.
Is there any other advice you can give me to help with this off-the-pill Journey?

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An unedited picture of me from many moons ago.
Hi! I have been living with PCOS for over 12 years and I have always been ashamed of saying it to my friends and family. I thought people will never understand how I am feeling and what I am going through. I would always look at other girls with good skin and go, I wish I had good skin like them, sighhh. Anyways, I would like to share my story on how I was diagnosed with PCOS. My periods were pretty regular until the age of 18 and it started changing around the time when I was enjoying myself and having fun in Uni. You could say I did what most students do, attend parties and drink a ton of alcohol haha! It was some of the best years of my life! When I turned 19, my acne started acting up and my periods starting getting more and more infrequent. Didn't really think too much about it and I put it down to stress as I was moving to Sydney to become an adult and start my working life! My acne started developing into big cysts and it started spreading all over my face and chest and that's when I got really really scared :( I went to see a dermatologist and was given a script for accutane. That helped keep my face clear and I was so happy for a period of time despite all the other complications with the medication! Mind you, I was on accutane twice! My new dermatologist thought it was strange that I was still getting pretty bad acne at the age of 23 and I was told to do a blood test to make sure everything is in check. I was thinking to myself, why wouldn't it be? I am still so young, right? Bad news, it turns out my androgens and testosterone levels were way way over the top for a female! My dermatologist told me to see my doctor right away as she suspected that I might have PCOS. HUH??? What the hell is PCOS?? I have never even heard of this condition! My doctor ordered me to go for an ultrasound and unfortunately, I was informed that I have these cysts around my ovaries and all my symptoms were consistent with PCOS. I was shocked, sad and distraught! I thought I was a really healthy individual and how did I get this? I had no idea what to do but I was really scared and being alone in Australia at that time didn't really help the situation. I was scared to ask questions and just followed what the doctor prescribed me to take. Voila, I was put on the contraceptive pill for 10 years! What is your PCOS story?
PCOS IN THE NEWS || The PCOS resolution S.Res.336 passed in the U.S. Senate! The resolution recognizes the seriousness of polycystic ovary syndrome and the need for increased education, research and treatment options as well as a cure for PCOS. The resolution also designates September as PCOS Awareness Month. PCOS Challenge: The National Polycystic Ovary Syndrome Association (@pcoschallenge) led this effort with the help of our advisors, advocates and a coalition of 70 national and international organizations. Thank you and please continue to support our mission to increase awareness, education and research to improve the lives of those affected by PCOS. Read more: https://pcos.ch/sres336-passes Donate to PCOS Challenge: PCOSChallenge.org/giving Also, be sure to follow @pcoschallenge on IG for updates.
"Doctors don't really understand PCOS. It is up to us individually to educate ourselves and become empowered"
Who's with me?
My experience coming off the Pill....
I came off the pill nearly 2.5 years ago after being on the pill for nearly 10 years. The pill has solved many of my PCOS symptoms including regulating my periods, reducing mood swings, managing my skin and hair loss and helped keep my weight under control. It served its purpose but I decided that I wanted to a break from pumping my body with chemicals and being open to find natural and safer ways to deal and manage my PCOS.
After reading countless articles about the potential side effects of the Pill including the possibility of blood clots terrified me and it made me think twice about continuing with the pill for another 10 years. According to a published article, the risk of getting a blood clot per year from being on the pill is one in 2,500.
I went cold turkey after making my decision to part ways with the pill and oh boy, it was a wild ride! My acne started coming back within a couple of weeks, my hair started shedding and of course, coming off the Pill, my periods went haywire and I remembered not getting my first period until nearly 3 months later. It took a lot of hard work and dedication to continue with my regime and doing research about other ways to manage PCOS symptoms.
It was one of the hardest things that I had to do in life and I felt so much anxiety, worry and concerns about the changes in my body. I would like to say that despite everything, I have also learned a great deal about myself and I am so proud for not giving up and fighting till the end. I have read and gained so much knowledge about PCOS and the different medicines, supplements and natural ways to manage PCOS.
If I could just say one thing....I wished I did not start the Pill 10 years ago and read up about PCOS and other alternatives out there. I would love to share these alternatives with you in later posts so you can do the same and come off the pill :)
What has been your experience coming off the pill?
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I have all the above except being overweight :(
What symptoms do you have?
If you have PCOS, ask your doctors to do careful evaluation for endometrial hyperplasia and cancer. Also, if you have not had a period for more than two months and are not pregnant, see a doctor to prescribe you a progesterone option to help you bleed. PCOS is a significant risk factor for developing endometrial cancer. This study looked at women younger than 35 years old with endometrial cancer (EC) and/or atypical endometrial hyperplasia (AEH). The study showed: - Over half of the young women (56%) met criteria for PCOS - PCOS women had higher BMI and rates of insulin resistance - Had irregular or absent periods - Were diagnosed with PCOS and EC or AEH late (after more than an average of 13 years of irregular cycles) - Women with PCOS lost their uteruses to hysterectomy more often than those without PCOS because they got diagnosed with EC at more advanced disease stages and did not respond well to EC medication. Read abstract: https://pcos.ch/pcos-ec (See link in profile) . . . . . . . #pcos #endometrialcancer #cancer #pcoschallenge #pcosawareness #infertility #pcosjourney #fertility #pcoscysters #pcossupport #cysters #healthy #infertilityawareness #health #ttc #ttcsisters #ttcjourney #pcosfighter #vegan #paleo #keto #glutenfree #skincarecommunity #insulinresistance #diabetes #diabetesawareness #health #hormonehealth #wellness #womenshealth
We have an urgent call-to-action for women and families affected by polycystic ovary syndrome and healthcare providers. PCOS Challenge: The National Polycystic Ovary Syndrome Association is holding a Congressional briefing on Capitol Hill this coming Wednesday, September 27th and we need your support to compel Congress to take action to help women and girls affected by PCOS. As you may have seen in the media, PCOS Challenge worked with @repdavidscott (GA-13) and 20 other leaders in the U.S. House of Representatives to introduce resolution H.Res.495 in the House. H.Res.495 recognizes the seriousness of polycystic ovary syndrome, the need for further research, improved treatment and care options, and for a cure for PCOS. It also designates September as PCOS Awareness Month. This historic and bipartisan effort now has 31 cosponsors and support from 15 major national associations. It represents the first time there has been a central focus on PCOS in the U.S. Congress. CALL-TO-ACTION: Please send us a letter to drop off to your Congressperson about cosponsoring H.Res.495 and which lets your Representative know how PCOS has affected you, someone you know or your patients. Three Quick and Easy Next Steps: Step 1. Find your Representative by entering your zip code and address at http://house.gov Step 2. Please personalize the Word document cosponsorship template letter at https://pcoschallenge.org/cosponsor-draft-letter.docx (See link in profile) Step 3. Email your personalized letter to [email protected] or fax it to PCOS Challenge at (301) 244-9902. We will drop off your letter at your Representative's office in Washington, DC while we are there for the PCOS Congressional briefing. Thank you for helping to change the future for millions of women and girls with PCOS. . . . . . . . #pcos #pcoschallenge #prioritizepcos #pcosawareness #pcosawarenessmonth #infertility #pcosjourney #fertility #pcoscysters #pcossupport #cysters #healthy #infertilityawareness #health #ttc #ttcsisters #ttcjourney #pcosfighter #diabetes #vegan #paleo #keto #glutenfree #health #eatingdisorders #wellness #womenshealth #dermatology #skincare #skincarecommunity (at Cannon House Office Building)
