Sep 1, 2025
Shout out to folks with NF2-Related Schwannomatosis/Neurofibromatosis Type 2!
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Shout out to folks with NF2-Related Schwannomatosis/Neurofibromatosis Type 2!
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Happy NF awareness month to all my fellow baddies with Neurofibromatosis.
For those not aware NF is a group of genetic conditions including Neurofibromatosis Type 1 (NF1), Neurofibromatosis-2 related-schwannomatosis (NF2) and schwannomatosis (SWN). NF1 is one of the most common rare genetic conditions. NF1 which I have effects 1 in 2500 people, NF2 1 in 25000 people and SWN is 1 in 70,000.
NF affects everyone differently and to different levels.
To learn more about NF:
Home
Neurofibromatosis is a manageable genetic condition characterised by benign tumours. Learn more about its symptoms, diagnosis and treatment
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(comic panel redraw)
It's May again, and that means it's NF Awarness Month. If you can, take a little time to eductate yourself about the condition. Perhaps even donate to one of the NF charities such as Nerve Tumours UK or the Neurofibromatosis Network.
As someone with this condition, it would mean a lot to me if you helped spread some information. I'll make a more personal post about my experience living with the condition later.
💚💙
NF and Transness! If everyone who sees this could reblog it that would be great.
I want to start a group for people, like myself, who are transgender and have neurofibromatosis. (Type one or two) There's very little research on if hrt and nf cause any complications. NF has complicated my relationship with my body as has transness. I want to get in touch with other people who might relate. So if the internet could help me find some other people like myself, that would be awesome!
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
Free to watch • No registration required • HD streaming
A neurofibromatosis disability/disorder flag please
Neurofibromatosis Pride Flag
PT: Neurofibromatosis Pride Flag /END PT
Neurofibromatosis (NF): a group of three conditions in which tumors grow in the nervous system. The three types are neurofibromatosis type I (NF1), neurofibromatosis type II (NF2), and schwannomatosis. In NF1 symptoms include light brown spots on the skin, freckles in the armpit and groin, small bumps within nerves, and scoliosis. In NF2, there may be hearing loss, cataracts at a young age, balance problems, flesh colored skin flaps, and muscle wasting. In schwannomatosis there may be pain either in one location or in wide areas of the body. The tumors in NF are generally non-cancerous.
Source: Wikipedia.
I used the brain tumor flag by @pinkfruitgender as my inspiration both for the colors and the meanings.
The flag meanings are:
Pastel pink: the three types of NF
Yellow: neurological differences
Pastel red: pride and community
Yellow: chronic illness
Light beige: diversity of experiences between all people with NF
So it has come to this. I have been called out as a fake and a liar who has been trying to get internet points and not actually sick or deaf. I never thought I'd have to prove my nf2 and disabilities, but here's some of my shots from the past few years. I work very hard to try and do the things I can. I am also super positive and try very hard running blogs that promote mental health, raise awareness for NF2, run support the deaf community in my area and am a fairly active member in a few different support groups online.
I am both hurt and saddened by this accusation. My NF2, disabilities and mental illnesses are each major factors in my life that I try to help coach and support other people through. I've been a very vocal advocate for several groups, and I cannot describe how much it stings when I work so hard and try to do so much. Things like this make me want to step away from my computer for a while and focus on myself. I love all of you guys, but my heart hurts
Introducing the NFCord!!
Happy NF awareness month everyone!! I’ve decided to celebrate by creating a server for people with NF, be it NF1 or NF2!! This is a server to meet, connect with, and get to know others with NF, since we seem to be so few and far between and it can be rough feeling alone and like you don’t have a community.
Join here!!
Please note that this server is ONLY for people with NF!! Make sure to read the rules and post an intro!! Also, feel free to (please) spread this, even if you don’t have NF!!