Shout out to folks with Minor Hyperekplexia!
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Shout out to folks with Minor Hyperekplexia!

Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
Free to watch β’ No registration required β’ HD streaming
Shout out to folks with Major Hyperekplexia!
Shout out to folks with Hyperekplexia!
Drama in one of my FB genetic condition support group:
Admin says, βThis group is only for people with NF or parents who have children with NF who are under the age of 18.β
The vast majority of others:
βHow can we spread awareness if this group is limited?β
βBut I made friends here.β
βThis is discriminatory. We should be open.β
βI donβt understand.β
βIβve learned so much here. I have to leave now that my kid is above 18?β
Etc.
Bitch, there are a lot of other groups focused on awareness, support for family and friends of those with NF, what is so hard to understand about us wanting a space thatβs just for us?
Also if you are in the group because your adult child has NF - have them join the group. Maybe they donβt want you blabbing about their medical condition to strangers.

Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
Free to watch β’ No registration required β’ HD streaming
Shout out to folks with a 1q21.1 Microdeletion!
I think that if you might have a genetic condition that could be life-altering and really bad, you should get tested. Just. Get tested. Spit in some tubes. Takes five minutes. I don't know. Just don't have the option and ignore it because you're probably fine. Because it might not be fine.
There's people who care about you. Just get the damn test.
Kinda wanna make a dragon cosplay and go to a Ren faire and pretend not to be a dragon.