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Huh? Oh, yeah, my summer's been good.
What'd I get up to?
Oh, well my hometown burnt down,
I worked at a summer camp, it was really fun!
And I'm drowning in itemized lists and price tags because my grandma is too dead to do it herself.
How about you?
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Monday, January 27th, 2020. I guess third time is the charm. I have the flu AGAIN, third time since September. Rite Aid could NOT dispense my meds because I had the flu in December, and they were not approving the medication again. Thank God for secondary insurance. Trying to stay hydrated and warm. Hand sanitizer and Clorox wipes are your FRIENDS. #sickofbeingsick #fluseason #insurancesucks #stayhydratedmyfriends #nomoresickness #tired #goingtobedearly #daytwentyseven #daytwentysevenof366 (at Facey Medical Group) https://www.instagram.com/p/B72mCtkAvbQ/?igshid=1plsgle3y4mb5
8 Days of meds left and Insurance says they won’t cover Gleevec and it’s been fun trying to see about the generic. They want $1900 for it. Gotta Love Insurance! It will all work out & God will guide us. I think it’s him telling me it time for Brandon to have a break. God is good all the time 🦋🙏🏻!!! #insurancesucks #godisgood #greatthings @bcoopersmiles
Hey all. Gotta take a break from the food porn & pupper pics to send out an SOS. My amazing father-in-law was diagnosed with a brain tumor the size of a pool ball last week. He's having surgery on Friday to have it removed, but in the meantime, his work is denying him disability due to having just recently returned from knee replacement surgery, and he got notice that his insurance is being cancelled. He is truly the most generous, caring, devoted, and loving person I know, and if anyone is deserving of help, it's him. If you even have a few dollars to spare, there's a link to his GoFundMe in my profile. And if you can send up a good thought & some positive juju for him during his surgery on Friday, that would be much appreciated as well ❤ (First pic is me, my husband, his step-mom & his dad on our wedding day. Second pic is me & Poppa at his annual birthday Red Sox game) #family #fambly #poppa #gofundme #help #love #helpmypoppa #tumorssuck #insurancesucks #healthcaresucks
Can I get a hand out please?? 💁💵
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Ah insurance and the U.S. healthcare system ... the neurological monitoring folks called me back today and said, wow, your son has had a lot of surgeries. (Right, I'm not an idiot, and when I say the billing used to be one way and now it is another, I'm not blowing smoke, I've been dealing with this every 9 months for 7 years). It turns out that despite Wednesday's guy telling me done was done and he could offer me a discount on my portion of the bill, they are, in fact, still in negotiations with the insurer and I should sit tight. I wish one did not have to get angry and obnoxious to resolve these types of issues, but I have not found the kind and sweet get the job done (I don't know, maybe I just go to angry and obnoxious too fast?). On the plus side, whether it works out or not, they only think I'm carrying a balance for the last two surgeries, so while that isn't great and is not money I've saved, at least it isn't the past, you know, 12 surgeries.
Does anyone have a half of a million dollars I can borrow?
I am in it up to my eyeballs and I don't know what to do anymore. I skirt dozens of phone calls a day from bill collectors, I have a folder the size of the Harry Potter series in my ottoman with numbers that my brain cannot fathom and a stress level that has reached beyond any reasoning. (My phone is ringing as I type this, of course) Finn has two insurances and neither is willing to pay anything. We ((literally)) used up all of our "talk" minutes on our cell phone plan last month being on hold with Aetna and Medicaid, in which we got absolutely no where. We're caught up in a world of medical jargon that we do not understand and being sent on wild goose chases that result in nothing but frustration. Add the two new nights spent in the hospital and it has thrown me over the edge. I have spent the last two days either crying or trying not to cry, feeling like I'm stuck in a pool of quick sand, the more I struggle, the more I fight, the deeper I sink. I desperately need one day without a single phone call, without the dread of opening my mail box, just one day without $500,000 looming over my head. Now it's gotten to the point of interfering with Finn's care. We could not get him his Synagis shot for the month of April (the injection that protects him from RSV), he has yet to receive the booster to his flu shot, and we cannot get insurance approval for a different type of medicine to control his reflux- the poor kid cannot eat more than 4 ounces at a time without getting sick, he cannot eat baby cereal or baby food yet as he can't keep it down. And here I am, stuck. Not knowing what to do to remedy the situation. My mom, Ty and I are going to try one more calling spree on Friday to see if we can make any headway, and if we cannot it seems my options are to hire an attorney, which I am not sure how we are going to afford, or to file bankruptcy. I promised my parents that I would write a letter to our senator, but I cannot help but to feel that it's not going to get me anywhere. Of the thousands of people he has to deal with, what would inspire him to read my letter? To help us? So hopefully I can take inspiration from Finn to keep fighting even though I feel discouraged. To "keep my trunk up" and force someone to help us settle this.
Oddish sort of week... Went to the Doctor for the first time in a year...Yep. Still a diabetic. Still need drugs to survive properly. Had to quit those for the last 8 months because full time performers don't get much in the way of insurance. Just managed to get real insurance this month so looking forward to feeling like a normal healthy person again...after I get used to the drugs in my system. The first week or so are going to be hell. And tomorrow I am on my way to perform for the University of Illinois- Got four shows to do before heading back home. Leaving at 11 am, should be back by 1 am the next day. Friday I get to see my son on stage doing the singing and dancing thing, then Saturday off to the Midwest Media Expo. Unfortunately, Steam Powered Giraffe will be performing on Friday. If I am lucky, I will get there in time to see Voltaire on Saturday. No point to this really...Just having a...day?
