#dyingmattersweek

Final day of wearing yellow for Dying Matters week; I’m proud I managed to find something yellow in my pj drawer 😂! I was going to make a video today but I’ve been feeling poorly and spent the day cwtched up on the sofa surrounded by heat pads, so it’ll have to wait for a better day! I’m just gonna say this; let’s talk about death y’all. It happens to us all, dinner or later! #dyingmattersweek #letstalkaboutdeathbaby #wearingyellow💛 https://www.instagram.com/p/CAOLaFNjp7-/?igshid=z47heh05bcwl

“That's the point of it, Bryce. Of life. To live, to love, knowing that it might all vanish tomorrow. It makes everything that much more precious.” - @therealsjmaas Spending the fourth day of Dying Matters week appreciating all the things that make life beautiful and all the pain bearable; friends, family, dancing, coffee, sunshine, nature, dogs, Crabbie’s alcoholic ginger beer, music, books, potato wedges, neighbours... there are innumerable seemingly small beautiful things and moments every day, and it is these moments that make up the marvellous tapestry of our lives. Let’s appreciate them 💛 Everyone dies, and no one is guaranteed tomorrow. This is the reality of life; it can seem scary, but it doesn’t need to be. Let’s start talking about death the way we talk about everything that’s a part of our lives. If you’d like to ask me about palliative care, please do! I’ve already had some excellent questions I’m ready to answer. #dyingmattersweek #letstalkaboutdeathbaby #palliativecarewarrior #crescentcityquote https://www.instagram.com/p/CALzfNND7D6/?igshid=1vndmklkp8uhv

Wearing yellow every day this week to show my support for Dying Matters week 💛 today was yellow jeans and a cardie! I’m a bit more restricted than usual as sadly lots of my favourite yellow clothes are back in Cardiff whilst I’m isolating here in Swansea, but luckily I have enough yellow in my wardrobe here to make do! I’m very tired this evening (part of being a palliative care person y’all) but I’m still here to say; let’s talk about death, yeah? After all, the only things we’re guaranteed in life is that we’re born, and that we die. We celebrate and talk about our birth often; why don’t we talk about what we want at the end of our lives more?? If anyone has any questions about death, dying, palliative care or planning for the end of life, I’m here! Hit me up! #dyingmattersweek #letstalkaboutdeathbaby #wearingyellow💛 #palliativecarewarrior https://www.instagram.com/p/CAJHIQ2DXiL/?igshid=628vlcfr9f20

Good morning! Happy to be here 😁☀️🌻💛 Had a good night’s sleep and a much better morning than yesterday, despite a seizure. Also, I wore yellow again without even realising! Supporting the amazing organisation that is @dyingmatters during dying matters week (and every other week) trying to get y’all talking about death and dying. I hope you have a good day 😁! #goodmorning #happytobehere #palliativecarewarrior #dyingmattersweek #letstalkaboutdeathbaby https://www.instagram.com/p/CAHgiVOD6Bd/?igshid=10infdqkb7n5q

Once again I’m wearing yellow in support of Dying Matters Week 💛 I’m too tired this evening to say much except this simple message; dying is a part of life, and it happens to us all... so let’s talk about it! #dyingmattersweek #letstalkaboutdeathbaby #wearyellowtoshowyoucare https://www.instagram.com/p/CAGXDEAB1j_/?igshid=4rr78tw08hse

All ready for my weekly palliative care appointment via video call; got my mug, wearing my sunflowers 🌻, and I’m wearing this excellent headband! My funky headbands male my consultant smile so I’ve been trying to wear my most awesome ones every Tuesday! #palliativecarewarrior #palliativecareappointment #dyingmattersweek #letstalkaboutdeathbaby https://www.instagram.com/p/CAFqcNuDHIV/?igshid=15xkfauwdpj23

Today is day one of Dying Matters week; a week dedicated to getting people in talking about all things death and dying. As always, I shall be wearing something yellow and making a post every day this week to show my support and spread awareness. As a palliative care patient for the last 15 years, who has had more close calls than I can count, who’s grown up in hospices, I am intimately familiar with death and dying... but most people aren’t. I think we need to change that; especially during these uncertain times when so many people are loosing loved ones. If you’d like to ask me any questions about palliative care, please do! And even if I can’t answer, I’ll direct you to someone who can. It’s especially apt that today’s topic is sudden and traumatic death; something many people are dealing with due to Covid-19. I hope having open, honest and compassionate discussions can help some people going through something horrific. Finally, I want to share the message printed on my t shirt with all my fellow palliative care warriors; you are enough. #dyingmattersweek #letstalkaboutdeath #palliativecarewarrior #wearyellowtoshowyoucare https://www.instagram.com/p/CAEB8rJD7Up/?igshid=h6hzl6suvfq8

It’s the last day of Dying Matters Week!! Today’s theme is about diversity and inclusion, an incredibly important theme. Everyone and anyone should feel supported and understood on their journey through life, but this is especially important for those journey towards death. I’ve seen several excellent videos and discussions, on subjects varying from being Muslim, LGBTQ+, being a young adult, and being a person of colour. To see these excellent discussions, I recommend searching the hashtag on twitter! In my case, I represent something fairly new to the world of palliative care; a young adult who’s grown up knowing she was dying. I’ve had a lot of interesting discussions, and even disagreements, with my adult palliative care team over the years... and it’s usually because they’re just not used to working with young people who have such a complete understanding of the palliative care world. But the good thing about my team is that they’ve been willing to listen, and to learn. As someone who’s a gobby, opinionated, stubborn young woman, this is half the battle for me! I’ve had doctors completely dismiss my 24 years of experience of living with my pretty much unique condition... simply because I’m young, female, and in one drs case, because I was wearing dungarees. Yes, you read that right. Basically, I feel diversity and inclusion is one of the most important aspects of palliative care, and it’s something that ya activists in the community should encourage, create and embrace. #dyingmattersweek #lastday #letstalkaboutdeathbaby #palliativecarewarrior #inclusionanddiversity #theyreimportant (at Llansamlet) https://www.instagram.com/p/BxkvymfhNpe/?igshid=11xtizzaxgpmv