own 2 cents about cure autism
autism cure research, generally not coming from point of, those with it wanting to improve life this way. but more so—people around them believe it what they want it what they need it improve life, and, uncured autism seen as … difficult for people around them, expensive for government to provide services, take up resources in medical places, etc.
majority autistic people *in actually autistic community, who understand this topic, & can talk about their opinion* don’t want whole cure
there not-small-group of autistic people who cannot reliably tell you what they think about this, or in way that easily understood (can’t communicate, can’t understand, etc). they need be remembered in this conversation (& arguably centered… bc they gonna be more affected. see below)
having said that. there exist autistic people of all types who would want cure for own autism. out of those have seen myself, majority of them [high support needs / nonverbal or level 2/3 or diagnosed severe or significant symptoms of some sort] whose life extremely different from peers because of it (& like majority of their problem not caused by “society” & won’t disappear if society & capitalism not exist anymore). it how they feel about their own autism, n feel counterproductive in “educating” them about their own (clearly personal and upset) feeling about what they want do with own disorder, especially since they not funding cure research or whatever. but—
autism, developmental disability that start in childhood, famous for be the “be treated as can understand and make own decisions” and “have autonomy respected” and “not ever forced coerced do anything” and “not force abusive therapy to make them appear ‘normal’ ” disorder. (sarcasm) — don’t really believe we as society are at place where we would actually respect “only for people who want it. won’t force it on people who not want it”.
aka. if cure is post-natal, AKA happen after birth… they will directly or indirectly force cure on autistic people
force post-natal autism cure will disproportionately impact those who… higher support needs, diagnosed level 2/3, diagnosed moderate severe, diagnosed low functioning, diagnosed comorbid intellectual disability or global developmental delay, diagnosed comorbid genetic developmental disability, nonverbal… diagnosed children, in conservatorship, ward of state, in prison, generally not fully legally allowed have final say in decision making… visibly autistic, have/said to have severe behavioral issues, BIPOC especially Black people… (incomplete list)
which. not to say autistic people who not any of these won’t be affected at all. because will. but as a whole, people on that list as a collective group, will be more impacted, more coerced, more forced, even won’t be given choice, to take cure (maybe won’t even be told was given cure), over people not on that list as a whole.
am going emphasize that autism is developmental disorder that start in childhood & children get diagnosed with it & children legally not final say in make decision & children very easily talked into agreeing without full informed decision & those diagnosed as children more likely be [higher support needs / nonverbal / more significant symptoms] (EDIT: at time of diagnosis) because those most noticeable earliest + global developmental delay then catch up later on happens (to vastly simply it to a fault, quoting someone, “no shit they high support needs, they children.”)
can also see welfare slowly not covering uncured autistic people, insurance decrease / deny / make harder coverage for autism related services other than cure, schools & esp special education less support for autism, etc. general official resources for autism decreasing (which. not much to begin with even pre-cure), which again impact all autistic people but especially list above… oh and poor people. can also see stuck in limbo of “will not get support & welfare if uncured autistic, but no money to cure” because this shit will be expensive
when this much at stake (aka if there no resource for keep be autistic, n resources locked away only able get after cure), when big percentage of autistic people cannot reliably show informed consent in some way (cannot reliably communicate, cannot reliably show they understand, or literally not allowed have decision capacity legally, etc)… if an autistic person say yes they agree. actual willing yes? not coerced? not misled? not forced into it?
autism & autistic people (& by extension, care people they depend on) don’t have enough support to begin with. in this current reality without cure lol. can we focus on that too pour as much money in that too — let’s not talk autism’s inherent quality of life until you give all autistic people as much care as they need & for it be freely n easily available
don’t really think current science have enough tech & resource cure autism like this. autism is complex disorder with complex sources & hard to say if current what called “autism” based on behaviors & internal reported symptom not actually group of different disorders.
if cure pre-natal (e.g genetic identification & abortion. anti choice unkindly DNI) - see: down syndrome
however: finding genetic cause =/= cure. find genetic cause can easily lead to find cure research. but should be clear that they not equal to eachother, not automatic mean eachother.
um. missing many things probably
TL;DR. don’t think right now society at place where… have widespread enough, nuanced enough, critical enough, & enough awareness/acceptance/understanding of ALL autism (and disability as a whole).
enough support for autistic people for autism-related needs & general needs (financial, food, etc).
world where autistic people who can make own decisions about self actual able make own decision about self, & world where autistic people who genuinely can’t (for now or ever) actually protected from harm
and honestly don’t think we have enough scientific and medical advancement/knowledge/ability
etc
to actually make sure this won’t go haywire
.
idk if anyone can follow this
autism issue is disability justice is cross-movement justice. autism issue depends on liberation of so many groups of people (like welfare reform, prison reform) 👍
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