#chronicbadass

gratuitous selfies cuz these @converse sneaker wedges slay me . . #latergram #chronicallyill #chronicpain #chronicbadass #disabledandcute #selfie #selfiesunday #selfiegram #wheelchairlife #wheelchairbabe #wheelchair #wheelchairbarbie #ootd #ootdfashion #fashion

Latest 3 watercolor paintings done just this week. Gosh, actually the last 3 days! I’ve been kind of anxious and painting helps me deal with my depression and anxiety a lot. It really helps me when I can’t get in to see my therapist. Do any of you have a fun hobby like this? I hope you have a creative outlet like this that helps you emotionally or physically. I notice sometimes it makes me block out physical pain or discomfort while I’m creating something. Very helpful. I hope everyone has had a beautiful and relaxing weekend. I stupidly ate food because it’s the Super Bowl but my stomach is not interested in digesting anymore. I’m trying to avoid a feeding tube for as long as possible. I can’t avoid it forever but I can delay it. Love all your faces! #watercolorpainting #watercolor #watercolorofinstagram #chronicbadass #chronicillness #spoonie #therapy #arttherapy #superbowl2020 (at West Jordan, Utah) https://www.instagram.com/p/B8FlvUegl2E/?igshid=amzmbbo7eqee

Rough day. Changing my insulin pump site. Blood sugar above 300 for the first time in weeks. I hate diabetes. I have type 1.5 which I didn’t even know was possible until a couple of weeks ago. #diabetes #ihatediabetes #diabetestype1.5 #chronicbadass (at West Jordan, Utah) https://www.instagram.com/p/BpsAFZKHq3n/?utm_source=ig_tumblr_share&igshid=16i2pvnxvkueb

My beautiful aunt Geri made me a cute blanket and dropped it off last night to my mom for me. How cute is this? I adore her. The last few days have been the absolute worse and I’ve done nothing but cry for almost 2 days straight. My health has declined so rapidly in just a few days. I’m breathing worse, I feel worse, and my pain has gotten worse. I am really struggling so any prayers and good vibes you can send my way would be appreciated. This morning I have a procedure being done at the hospital. An endoscopy. They’re going to stretch out my esophagus again so I will hopefully stop choking on everything I drink or eat and explore a little to see if they can figure out the source of my stomach pain. It may just be that my #gastroparesis is getting much worse or it could be something new. I am never surprised anymore. #endoscopy #infectiongoaway #spoonielife #chronicbadass #spoonie #lowoxygenlevels #dyingainteasy #fibro #RA #pyelonephritis #terminalillness (at West Jordan, Utah) https://www.instagram.com/p/Bo_vy98g1Fh/?utm_source=ig_tumblr_share&igshid=1wgpqlywsdicr

How is everyone? Happy Saturday! I have been having a rough few days because I feel like I can’t breathe and my oxygen keeps dropping. I thought most of it was due to really awful air quality from all of the wild fires going on. I was in the ER last Monday and I kept pressing the doctor for answers. The doc said maybe some of it was the bad air and kept hesitating when talking to me. They had done X-rays, a CT Scan and a breathing treatment. The breathing treatment helped some. He hemmed and hawed upon discharge when I questioned him and he finally said my scan showed signs of mild pulmonary hypertension and my discharge paperwork would include a referral to a cardiologist. He said that he would let the specialist run more tests and give me an official diagnosis (of which I can’t get in to for 3 more weeks). Anyone have this? I’m not enjoying the information I’m reading online. As if I’m not already dying from other shit, lets pile on a couple of new diagnosis, am I right? I am purely looking for information, it’s not yet an official DX yet but I am scared to see the doc. However, I do enjoy being able to breathe haha. I can’t handle any sort of breathing problems and it took me a good 2 years after I healed from a very serious pneumonia before I could handle being around a Smokey place, or even if someone burned food. I have the fan going this morning, trying to not turn on our swamp cooler as long as I can hold out since the wild fire smoke is still in the air. I have essential oils diffusing all over the place. I’m having panic attacks because I feel claustrophobic not being able to breathe. And then the last maybe 6-7 days my blood sugars have just gotten out of control again. That means my infections are worse. All of this and my infectious disease doc and my urologist are both out of the office for a few more days. Someone save me! Ok, I’m going back to my oils and fan and I hope you all have an amazing Saturday! #chronicbadass #pyelonephritis #makeupslinger #cantbreathe #lippylashlove #youniqueslinger #younglivingessentialoils (at West Jordan, Utah)

Day 9 & 10 of #makingeverydaycount (sorry I didn’t post yesterday) I got to watch the live streaming of the Younique convention for the last couple of days. It wasn’t as good as being there in person but it was a close second. Lots of snuggles from the Tiny Terror. Then today Jason drove us all to IKEA so we could find something to organize my closet. No scooters so Jason pushed me all around in a wheelchair. I need my own scooter really bad! Anyone have a good one you’re getting rid of? As you can tell by the before pic I had so many clothes that needed to be hung up or just put away. (And no, that’s not what my room usually looks like. We took the picture after yanking everything out lol. We found some great shelves for the cubby and now all my pants, shorts, leggings are all organized. Jason & Brady built the cubby thing and then Jason took care of the entire project of putting it all away. Every day I remember how lucky I am to have Jason & Brady. I am truly blessed. It’s funny but now that I’ve shared that my body is breaking down and attacking itself from the inside out, I am a little surprised by people. People who I thought would be there for me actually aren’t. Then there’s people I only know through Facebook that are definitely my friends but I’ve never actually met in real life. Or people who have messaged me that I’ve never spoken to before that day that are sending so much love and support and honestly offering to help, to bring meals, to go on adventures with me, even run errands for me and my family. A crisis always shows you who is important in your life and who can’t be bothered. Love to all of you 💕 #chronicbadass #pyelonephritis #chronicpain #sjogrenssyndrome #RA #notreadytomeetmymaker #familyisntalwaysblood #ikea #retailtherapy #blessed (at West Jordan, Utah)

Day 5 of #makingeverydaycount (posted late) Lots of seizures. A little memory loss. But I certainly remember my cute nephew Silas and my niece Liliana coming to visit me. They brought much needed laughter to my house and I sure do love them. My kiddo hung out with me last night for awhile and he’s letting me take his picture again lol. Wahoo. #chronicbadass #obsessivelygrateful #grateful #love #family #type2diabetes #pyelonephritis #notdeadyet #fibro #RA #ankylosingspondylitis #autoimmunedisease #arthritis (at West Jordan, Utah)