#alpha1antitrypsindeficiency

My dude is 15 months post liver transplant today. Every month, every day still a miracle. ☝️🏼 . . . # livertransplant #organtransplant #posttransplant #donatelife #beanorgandonor #alpha1antitrypsindeficiency #a1ad #awareness

Alpha-1-Antitrypsin Deficiency 𝐃𝐚𝐢𝐥𝐲 𝐀𝐰𝐞𝐬𝐨𝐦𝐞 𝐅𝐋𝐀𝐒𝐇 𝐂𝐀𝐑𝐃𝐒 𝐃𝐨 𝐜𝐨𝐦𝐦𝐞𝐧𝐭 𝐨𝐧 𝐩𝐨𝐬𝐭 𝐅𝐨𝐥𝐥𝐨𝐰 @𝐦𝐞𝐝_𝐥𝐢𝐟𝐞_𝐞𝐚𝐬𝐲 𝐓𝐚𝐠 𝐮𝐫 𝐟𝐫𝐢𝐞𝐧𝐝𝐬 🏷️ 🏷️ 𝐋𝐢𝐤𝐞 👍👍 & 𝐂𝐨𝐦𝐦𝐞𝐧𝐭 @𝐦𝐞𝐝_𝐥𝐢𝐟𝐞_𝐞𝐚𝐬𝐲 #alpha1antitrypsindeficiency #flashcards https://www.instagram.com/p/CEOEHI3B92q/?igshid=n02aqtszfa9h

Flash back to 9 weeks ago today when Pops got his new lungs! This journey has been super long and the most stressful thing I ha e ever been through but we know in a few more weeks (hopefully) it will all be worth it! I love you pops! You got this! #alpha1 #alpha1antitrypsindeficiency #alpha1awareness #organdonation #organdonationawareness #organdonationsaveslives #lungtransplant #doublelungtransplant #lungtransplantsurvivor #wewillgetthroughthis #withGodallthingsarepossible #wexnermedicalcenter #osu (at Ross Heart Hospital) https://www.instagram.com/p/BwyNT-4gC65/?utm_source=ig_tumblr_share&igshid=19v66sarivr7j

I can never get used to this no matter how many times we've been through this. We think it may be the flu but we had to rush my mother to the ER this weekend because it was hard to breathe with all the congestion she was having(on top of her lung ailments). It got so bad that they had to put her in ICU with a bipap ventilator because co2 was building up in her lungs. Hopefully this will resolve sooner rather than later!😔 #alpha1antitrypsindeficiency #autoimmunedisease #flu #mom (at John T Mather Memorial Hospital) https://www.instagram.com/p/Bu52e8zH8Ro/?utm_source=ig_tumblr_share&igshid=1ce2q37oij6ii

Mom hasn't been able to breathe good today so we took her to the ER. Her birthday is in 8 days and as many of you know, her Hospital visits lasts days! Hopefully she's out before then, it would suck to spend it in here😞 #mom #autoimmunedisease #alpha1antitrypsindeficiency #familyfirst https://www.instagram.com/p/BtSxaOaHWdC/?utm_source=ig_tumblr_share&igshid=1rz4fqyp1bsh6

So the past week has been pretty rough for us. My mom had a partial bowel obstruction in which they placed an NG tube to her stomach to relieve her and heal. Sunday she was discharged as it healed and she was able to hold food down. She couldn't sleep Sunday night or last night because she was having trouble breathing so I took her into the ER a few hours ago🙏 It feels like it never ends but I can never give up on her! #family #alpha1antitrypsindeficiency #autoimmunedisease (at Mather Hospital) https://www.instagram.com/p/BpkccnAHYSB/?utm_source=ig_tumblr_share&igshid=c3uk3tbo9nw0

We had a great day at the Alpha-1 walk. Thanks to my friends and family I surpassed my fundraising goal in ONE day! November is Alpha-1 awareness month...so if you haven’t already please check out my fundraising page (link on my IG profile) and make a donation if you can. #alpha1antitrypsindeficiency #alpha1awareness #alpha1walk #settingnewgoals #alpha1parents (at Santa Monica, California) https://www.instagram.com/p/BpdMWw7B9uy/?utm_source=ig_tumblr_share&igshid=1o0fezwru5ach

Pops loving his best polar bear life in my new fluffy blanket jacket 😂😂😂💙💜 #alpha1 #alpha1antitrypsindeficiency #organdonation #organdonationsaveslives #doublelung #blessed #Godwillprovide #alpha1awareness #weneedacure #wewearpurpleforalpha1 #wewearpurple #awareness #justbreathe #oxygen #oxygenwear #lungdisease #myalpha1story #raredisease #geneticdisorders #raregeneticdosorder (at Belmont, Dayton) https://www.instagram.com/p/BpbEmx5AaMa/?utm_source=ig_tumblr_share&igshid=1bsj5dwreai61