#allergists

It’s official: as of today, my son is no longer allergic to tree nuts or coconuts. Peanuts, unfortunately, are still on the no-go list, and are likely to remain there for the rest of his life, but he’s gone from a kid with a laundry list of allergies as a baby to just peanuts as a nearly-teenager and, even better, he’s managed to do it without ever having any reactions to anything stronger than a…

Allergy Testing & Immunotherapy Services - Coastal Ear Nose & Throat

Are Allergies Passed from Parent to Child?

Erin Malawer, Executive Director, AllergyStrong

FDA APAC Mtg Re: AR101

AR101 Mtg

Open Hearing

FDA APAC Mtg Re: AR101

I was so honored to be chosen as a speaker at the US Food & Drug Administration’s (FDA) Allergenic Products Advisory Committee (APAC) meeting (September 13, 2019).  The purpose of this groundbreaking hearing was for the APAC to have a discussion and make recommendations to the FDA on the safety and efficacy of Aimmune’s AR101 peanut allergy treatment at reducing the risk of severe allergic reaction (anaphylaxis) after accidental and unintended exposure in children and teens with peanut allergy.

  Representatives of major food allergy non-profits, knowledgable doctors with deep experience with desensitization, experts in psychology, the underserved population, patient advocacy as well as affected families offered an honest and complete picture of the lives and challenges of living with food allergies to the APAC panel.  Testimony focused on quality of life, psychosocial impact of food allergy, daily challenges, and unmet needs.  Discussion also centered on medical guidance, patient choice in regards to risk/benefit of AR101, and education as it relates to AR101 therapy.

  It is my hope that the committee approves this treatment.

  Until now, food allergy families have had only one management option: avoidance.  If the FDA approves AR101, it will standardize dosage, treatment protocol and, hopefully, increase its accessibility.  AR101’s approval could pave the way for more treatment options down the road.

  As of now, APAC is still debating and arriving at their decision.  Stay tuned for an update.

  Here is the testimony I gave today:

Erin Malawer

Executive Direction, AllergyStrong 

  Food allergies are a challenge that affect both the physical safety as well as mental health of patients and caregivers.  Bringing AR101 (Palforzia) to market as a treatment option has the potential to greatly improve quality of life for these families.

  What is the experience of having food allergies for patients?  In the words of my 14 year old son, “it’s a second, full-time job.”  And it starts the moment patients wake up beginning with:

The toothpaste they use to brush their teeth;

The sunscreen they wear;

The laundry detergent they wash their clothes with; and

The lip balm I wear when I kiss my son goodnight.

  Everything is a risk.

  And, then there’s the FOOD!  Meals, snacks at school, the baseball stadium, the movie theater.  Patients must be knowledgeable about ingredients; how and where food is prepared and processed; as well as how to communicate and educate others about their condition.  The burden falls on families and caregivers to prepare safe food for holidays, school celebrations, birthday parties, field trips, and travel.

  The thought and preparation is endless.  Food allergies are always on our minds.

  Anything misread, any small misstep could potentially endanger a patient’s life.

    The solution we’ve been given to keep him safe is simple, but daunting:  Avoid.

  In order to do that effectively, each patient and their caregivers must understand both the seriousness of food allergies and the risks of cross-contamination.   But, we also need to be intimately familiar with labeling laws and loopholes as well as manufacturing practices. 

  That keeps my child relatively safe at home.  But what about when he – and millions of other allergic children – step outside and navigate the real world?

  Avoidance is challenging – it relies on the understanding of others – who are less experienced – for our health and safety.  Avoidance is cumbersome – labeling laws are incomplete, manufacturers aren’t always forthcoming and decision-making, even at its best, is difficult.  Avoidance accepts food allergies and all the associated worry, guilt, and burden as a life sentence and – because we all make mistakes – it accepts reactions as an inevitable. 

  From an early age, my son understood these risks.  He has lived under the stress and reality that the next meal could cost him his life. 

  At age 8, my son educated his own grandparents on what it’s like to live with food allergies.  “Grandpa,” he said, “I can’t be careful 75 percent of the time.  I need to be perfect 100 percent of the time.”

  AR101 has the potential to change that.  If only he could have undergone treatment to lessen that incredible emotional burden.  AR101 (Palforzia) has the potential to make childhood easier for food allergy families.

  Food allergic children and caregivers often struggle with anxiety, depression, and social isolation.  Many children experience bullying at the hands of peers as well as adults. 

  In desperation, families are sometimes driven to turn to unregulated alternative treatments that leave them vulnerable and at risk.  Allowing for well-studied, standardized, accessible food allergy treatment outlines an established course of action for those looking for help.

  AR101 (Palforzia) would be life changing for patients.  It offers much-needed hope for food allergic families; relieves mental strain on the patient as well as caregivers; allows room for inevitable error; and it dampens accidental exposure and threat of severe reactions.

  It could specifically be transformative for patients in underserved communities where food allergy resources are often lacking, where emergency room visits are more common, and where reliance on those outside the food allergy community is necessary. 

  I’d like to end by saying, at the present time my own child is ineligible for this treatment.  No matter what the outcome is today, he will continue to live under the specter of food allergies.  But professionally, I must advocate for patients who lives can be improved by AR101 (Palforzia) and the possibility of leading a more normal life. 

  With this treatment, it may be possible for food allergy families to thrive and not merely survive.

Allergists taking tongue tablets

Allergists are more likely to prescribe a shot for an individual with a number of allergy symptoms. One pill beneath the tongue might goal a single allergy. (New research reveals that allergy capsules beneath the tongue have been rapidly used to deal with hay fever and dirt mite allergy symptoms, in line with a brand new research.

Allergy vaccines have been accessible for over 100 years, whereas…

Asthma allergies can effect anyone today no matter what the age. With so much pollution all around us people today are very susceptible to this condition and once they are effected there is a lot of diverse effects that it can have on them. The symptoms of allergic asthma range from coughing to wheezing, runny nose and can go up to trouble in breathing and pain in chest. Thus, before things take a turn for the worse it is very important for people to know how to manage their allergies in a more efficient manner.

To help in this here are a few great and practical tips-

Be sure that you know what your main triggers are- For this you need to get allergy tests done. These tests help determine the main triggers of your allergies and this way you know what you need to avoid.

Know the nature of your asthma- There are different types of allergies and you need to know the nature of yours so that you can manage it better. Reach out to a leading asthma allergy center near you so that you can find qualified allergists to give you the most suitable medications.

Use your inhalers whenever needed and do not leave home without them.

Never miss out on your medications.

Know when you need to visit the hospital and not just be dependent on your inhalers and medications.

Be mindful of the second wave of attack. Many doctors will tell you that asthma attack is often followed by a second wave which you need to be careful off.

Get regular tests done and visit your doctors from time to time. Be in constant touch with your asthma allergy clinic.

Do not stop treatment immediately when you or your child starts feeling better be sure to complete your entire course.

These few practical tips prove useful for people with allergic asthma.

 This blog post originally posted on:

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