alexis

Absolutely no one:

hi. so i’ve talked about this a few times on here but i usually end up deleting it but today i’m not. 2 years ago today (december 8th 2018) i was diagnosed with a massive brain tumor in my cerebellum. (also got my tickets to reputation but that’s not the point) this was the day my entire life changed. i started having pretty bad headaches in march of 2017 and i’m not one to complain so i didn’t really say anything. they got worse and worse to the point where i started throwing up and passing out at school so obviously my mom made me go to the doctors. i got a neuro exam (and passed) so it just sounded like migraines so he set up a CT scan just to be sure. my scan was a week later (friday the eighth) and the monday if that week i passed out in the school bathroom and went to the ER and they told me i had UTI and there was no reason of a CT scan. but obviously we still wanted one so we didn’t cancel it. i was fine the rest of the week. friday came and they told us they found a tumor in my cerebellum and that’s all the info they had. we got rushed to boston children’s and got another neuro test and a 3 1/2 hr MRI on my brain and spine (then my braces were on and they couldn’t read the scan so they took them off and i had to do it again lmao) not only did i have a tumor the size of a grape fruit but i also had encephalitis (inflation of the brain) which is almost more dangerous then the tumor. i was in the hospital for 11 days total. i had my surgery monday dec 11th but honestly i don’t remember much from that day. it was 14 hours long and it went really well!! they took out 80% of my tumor! recovery was hard. i had to relearn how to walk and i couldn’t move my neck because they cut through all my neck muscles. i was home in time for christmas and i went back to school on january 9th 2018!! i had my follow up app on january 11th and my tumors benign which i’m incredibly thankful for! it could have been so so bad and this was the best outcome we could have gotten! i have a genetic mutation called the braf v600e. the only treatment i had at the time was MRIs every 3 months. i’ve probably had my tumor since i was very young, it was very slow growing. about a year later we saw a little regrowth in my tumor so i started a very low dose of a chemotherapy thst usually used to treat melanoma but recently is being used to stop growth and hopefully shirk my tumor. (it won’t make me really sick and loose my hair because it’s such a small amount and also it’s a pill) i started thst last school year but then they warned us that it may cause me to be able to not have kids. so we stopped immediately and started the egg retrieval process. when thst was over i started my chemo again in like september of 2019. i’m gonna be honest, it’s been tough. they warned me about the side affects but i didn’t think anything of it until they were actually happening. i get sunburnt SUPER badly, my hair was thinning (it’s pretty much almost stopped now) i hsve a rash, my eyebrows are basically gone (they’re thinning too but i’m using a serum to help them grow) acne, fatigue, nausea, joint pain. and it’s really took a toll on my mental health, but the important part is i’m heathy. my tumor is stable and i’m heathy. this really sucked and tbh it still really sucks and it might suck for a while but i’m heathy and have an amazing support system and i’m so fortunate to have access to such great heath care. my heart goes out to anyone who’s gone though, going through, or will grow through anything like this or any other kind of heath scare at some point. i’m so so greatful for everyone who has been in my life the past 2 years. all of my doctors, my friends who are always there for me and most importantly my amazing family! also huge shoutout to my love taylor alison swift for being a constant in my happiness since 2008 but especially the past 2 years! i love u so much and i’m always gonna support and love u so so much nmw💓 im so incredibly lucky to be where i am today. it could be so much worse and i’m thankful everyday that it isn’t. i love all of u

LOVER FEATURING SHAWN