fuck health issues fr. i should have a little screen that tells me exactly whats wrong and whag to do about it
This is one reason I'm always watching Star Trek 😭

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we're not kids anymore.
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@soup-spoonie
fuck health issues fr. i should have a little screen that tells me exactly whats wrong and whag to do about it
This is one reason I'm always watching Star Trek 😭

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Cooking with a Disability
I have a restricted diet that requires me to cook all of my own food, and I also have an illness that causes fatigue and fainting spells. Here are some tips I have found helpful for when I need to spend time cooking but I don't feel well:
If you buy your meat from the butcher in a grocery store, ask them to cut the meat up for you! Almost all (American) grocery stores I've been to have been happy to do it. This includes cutting chicken off the bone, slicing up steak, etc. Just ask them nicely at the beginning of your grocery trip and come back a half hour later to pick it up.
Similarly, try buying pre-sliced fruits, vegetables, or baked goods when they're available.
Small, easily openable containers make life so much easier. Squeezable applesauce or yogurt, little jars of peanut butter, and other small foods are a staple in my house when I'm feeling sick.
Pre-made meals, if you're able to eat them, are also a great way to lighten your load. I know it can be a stressful to hear people say "oh, but the plastic!" Ignore them. Packaged foods are immensely helpful and only use a tiny amount of plastic in the grand scheme of things. Your health is more important!
Ask an able-bodied friend or family member to cook with you! Cooking together can be so much fun, and you can divvy up the tasks so that they are appropriate for your ability levels.
Put on some music.!This doesn't affect the food, but it makes a boring task a little more fun.
Do everything you can sitting down. I put my toaster, cutting board, blender, etc. all on my kitchen table. We almost never see it in media, but there is actually nothing wrong with doing these tasks while sitting down, as long as you can be safe.
You do not need to make an entire meal at one time. If a recipe involves chopping vegetables and cooking the vegetables, you can chop vegetables in the morning and cook them in the afternoon. A little bit of cooking is still cooking!
Food is food is food. You don't need to be eating avocado toast and a buddha bowl for breakfast every day! Focus on giving your body the energy it needs, in whatever form that may take. Cereal for dinner is a valid decision.
Cookbooks written for children often have very simple recipes that are great for disabled folk. For anyone with sensory issues (hello, neurodivergent friends!) kids recipes are mild and sensory-friendly. I own three or four kids' cookbooks and I use them all the time.
The dishes aren't going anywhere. Eat your food, and worry about clean-up after you have a hearty meal in your stomach.
Give yourself a hug from me. I'm so proud of you for persevering and taking care of yourself <3
I also do my peeling/chopping sitting down when needed--I started doing it during my second pregnancy and it's a great strategy to fall back on.
-Experiment with supportive shoes/ orthotics and special mats when you do have to stand-up cooking.
-One easy do-ahead part of cooking is to gather your ingredients all at once and then take a break. It'll also be more efficient this way.
-If you're heat intolerant, do as much of your prep/cooking in the cooler hours as you can. Fans are a lifesaver, and cooking is a great time to drink a cup or more of water since you're also exercising and heating up. A good chunk of meal prep can be done in another room, if your kitchen is warmer than the rest of the house. I do some of my meal prep in my recliner!
-Speaking of heat intolerance, stand to the side when opening a hot oven and wait a few seconds before reaching down into it. You'll avoid the blast of hot air in your face.
-If touching cold things causes pain, wear winter gloves when rummaging through the freezer. Speaking of freezers, if you meal prep ahead or buy in bulk to save money, there are mid-size chest freezers now that are VERY energy efficient, especially if you keep them full (fill empty milk jugs/containers with water and pack it full!)
-Keep your knives sharp: less stress on the joints in your hands.
-If like me you don't want to stop kneading bread despite your hand troubles, look for recipes that have you mix boiling water to make the dough. Kneading hot dough feels so. good.
-Use slotted spoons to get pasta, veggies etc. out of their pot. Someone else (or future you when feeling better) can empty that heavy pot of water later, and it won't blast you in the face with steam later.
-Find cooking/tools utensils with fat handles if you have hand troubles.
-Invest in a slow cooker or InstaPot.
-Learn which meals/snacks work well as leftovers. Grandparents/parents are a good source here!
-Along the same lines as the music thing: make your cooking space a happy place! Use colors, lighting, and decor that make you feel good. Watch YouTube videos that make you laugh or have a special show you binge every day when cooking. (I always have a binge show that's just for exercising.) Distraction is great and laughter is even better!
I've been too exhausted to write anything about this, but I've been in the hospital for 8 days. Hopefully going home tomorrow, not sure. Basically I had the same virus a lot of people did 3 weeks ago and now a lot of people are in the hospital with lung complications.
Maybe it was human metapneumovirus (HMPV)? I guess we'll never know. I tested negative over and over for Covid, flus, and RSV. HMPV is sort of related to RSV I think?
So it was a mild cold that went on too long, turns into bronchitis coughing. Which turned into pleurisy (thank you, Rheumatoid arthritis, for that 😑 ) which turned into pleural effusions and collapsed lungs (just lower lobes).
Oh and even though I've never had asthma, my lungs said "oh hey remember when Covid got all bronchospasm-y in 2021? Let's do that but way worse." I'm also on day 7 of an intractable migraine. They're giving me all the good migraine meds but I'm officially overdue for Botox now (every 12 weeks). Thank GOD I got transferred to a private room--fewer beeping/hospital sounds bc they are horrible dueing migraines.
(somehow I've had all this without pneumonia, when 2 years ago I got pneumonia twice easily??? Silver lining)
My lunga are much better now. But between the pleurisy still being bad at the migraine I feel like crap and I'm actually kinda dreading going home. The beds are good here, the room is brand new and spotless and pretty quiet, I get 3 healthy meals a day and can push a button if I need anything else. I'm getting my lungs checked at least twice a day and getting fluids whenever the migraine spikes. And I'm actually surprised how welIV Zofran helps the migraine nausea, considering that pillwise I do much better with Reglan. I'm also worried bc I *know* that as soon as I get home I will be tempted to start doing stuff, if only because I'm the only one who can cook actual good food. And I can't lt myself so that. I have to rest and devote what little energy I have to slowly building back my stamina, which is now in the toilet. And now my regular doc says I need to get checked for COPD, permanent asthma, all of it. At least the pulmonologist went very carefully over my imaging and said she saw no sign of Rheumatoid lung nodules or interstitial lung disease (like pleurisy, those can come with RA).
I'm just so tired and like... here we are again. Another giant hill of uphill recovery standing in front of me and I'm just too tired to start climbing. Especially with so much pain still--but if I Don't start climbing I will keep getting weaker. I will have our church bring some meals at least.
Why are chronic illnesses always buy one get four free? I didn’t want the first one to start with let alone a handful more?!? 😂😭
Just one more day until Kick the Immune System Day. I don't think I've ever looked forward to an infusion so much in my life.

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i really need healthy, able-bodied people to understand that there are many illnesses that cannot be cured and which, in many cases, don't even have effective treatments
and that constantly putting the onus on the people who have to live with these illnesses to simply "get better" is an incredibly shitty thing to do
and that it's not "toxic" for chronically ill and disabled people to feel down, and occasionally talk about how down they feel, in a world which continually disregards their suffering and makes their lives much more difficult than they need to be, sometimes deliberately
and that telling these people that they continue to be ill only because they haven't tried a certain exercise, supplement, therapy or diet will only further damage their health by causing them stress
and that doctors are not only not infallible magic-workers, but are very often actively prejudiced against their patients; especially female patients and patients who belong to marginalised and minority groups
please just understand this and accept that the chronically-ill and disabled people you speak to know more about their health and their limitations and what works or doesn't work for them than you ever could
thank you
If you live with debilitating stomach pain I see you, if you live with debilitating nausea I see you, if you live with a debilitating chronic illness I see you.
Truth be told most days as of lately I wanna give up. The idea of living with this body, a body that feels like so often is failing me, for the rest of my life sounds a level of exhausting I can’t even fully comprehend. Not only that, but people don’t talk how truly isolating it can be to live with an illnsss that affects your everyday life. An illness that affects your work life, social life, romantic life, literally all of it. If you’re someone who also finds yourself in this boat please know you aren’t alone. You’re not crazy, it’s not all just in your head, and your pain and symptoms are more than valid. I see you and you’re not alone.
living alone with chronic illness is so hard. being stuck in bed in the worst flare you've had in a while, left to fend for yourself, cry by yourself, try to occupy your time by yourself.
it's so exhausting. it's lonely. it's scary. it's depressing. it feels like the suffering is just endless without a person physically there to remind you that you exist outside your body and help you where they can.
and i just want anyone else stuck in this boat to know that you are cared about still. people remember you. people fight for your rights. it's not the same as having someone you love with you, and im sorry that we can't replace that.
but we can commiserate together about the horrors of it all and maybe make a few long distance friends who understand us and care.
and that still counts for something
Latest craze in spoonie fashion: wear electric mittens on your feet
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Oh lovely. Now some of my local doctor's offices are fielding calls with crappy AI. It's bad enough dealing with them for the big corporations, now this too 🫠
"I cannot transfer you to a representative" is my new least favorite sentence to hear from AI.
At least they're keeping the fake typing/fake office ambiance tradition alive.

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(ID: Two cards from the Cards Against Humanity game.
Black card: "This is the prime of my life. I'm young, hot, and full of _".
White card: "Moderate-to-severe joint pain." End ID.)
interaction i have with shocking regularity is when someone’s complaining abt someone they know and theyre like “ughh they’re 21 and dont have a job and refuse to learn to drive” and then they remember who they’re talking to (me. 21 cant work cant drive) and go like
I just want to live in a world where my doctors actually communicate with my pharmacies. So I don't spend multiple hours at a time being their unpaid courier! Is this too much to ask!
hate it when the people who I love are suffering due to circumstances beyond my control 👎 there should be a sea monster that I can slay to fix the problem
nobody ever gets locked in a tower or chained to a rock at sea anymore - it's always some shit like chronic illness or ptsd related depression
Your immune system getting weaker when you're stressed has got to be the dumbest stress response ever like oh you've been having a horrible terrible no good week? Let Me Make It Worse.

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they say you can't pour from an empty cup but i've been doing it my whole life and aside from all of these mysterious ailments it's working out great for me
A few reminders for anyone who's feeling the pressure to be productive...
It's ok to not be productive today. You're allowed to exist without productivity.
It's ok to be just a little bit productive.
It's ok to use energy on a hobby or something that brings you joy instead of something you "should" be doing.
You don't need to earn rest; you already deserve it.
Rest for the sake of resting. Let it be enough. You don’t have to justify it.