see my problem is if i “listen to my body” it literally only wants to lie down and take naps, all the time

Idk what person with chronic illness needs to hear this, but you can do things to make your responsibilities nicer for yourself. You can get an ice cream after a blood draw. You can sit down for tv time after an injection. You can pick out the bandaids that have cartoon characters on them instead of the plain ones. Being an adult doesn’t stop you from benefiting from encouragement. Go for whatever fits with your routine/abilities/budget and makes life a little better. A spoonful of sugar helps the medicine go down etc etc

Living with a chronic illness means never having enough energy to get through all the basic, practical tasks you have to do in a day. Which means that every day there are more and more tasks which didn't get done and have to be carried over to the next day. Eventually the list becomes so long that you have to accept that many of the things on it will never get done, and you end up living with a kind of graveyard of undone tasks which you go through life trying to ignore because you're just not able to do anything about them.

I think one of the biggest misconceptions about fatigue is that it's just a more extreme version of tiredness. Fatigue and tiredness are not the same thing. The biggest difference between them is that tiredness goes away if you rest, but fatigue doesn't. When you suffer from fatigue, your body keeps draining you even while you're lying down or sleeping. It's like a leak's been opened up somewhere and your energy keeps draining away no matter what you do. All you can do is wait and hope that at some point the flow will stop.

“Just sleep more when you’re tired!” If I slept every time I was tired you’d think I was in a coma.