Slytherin pride

That word DOES NOT MEAN you’re making it up. It doesn’t mean you’re imagining the symptom. What it means is that the symptom ISN’T DIRECTLY CAUSED BY ANY OF THE THINGS THAT WOULD NORMALLY CAUSE IT.

I fought to get a PCOS diagnosis for 2 and a half years. For the ENTIRE time I was fighting, I was dealing with 3 cysts that were not going away by themselves and eventually required surgery to remove. At one point close to the end of the battle, I suddenly went blind. I was visiting my parents and was standing on the veranda looking out over the tree we had planted in memory of my dog and suddenly I got one of the shooting pains that I was quite frankly used to at that point and my vision started to go dark. It was like the sun was setting while being completely hidden behind storm clouds but it was 2pm in the middle of Summer on a clear day. Within about 30 seconds I couldn’t see ANYTHING. I was 27 years old and I was screaming for my mother.

My mum raced me to her doctor (he was a 15 minute drive away as opposed to 45 minutes to the nearest hospital) and he quickly worked out that there was nothing wrong with my eyes and what had happened was totally unrelated to them. Then he said it was psychosomatic and I freaked out, yelling that I was NOT making this up and I definitely wasn’t imagining it. Very quickly he calmed me down and said he believed me and I had misunderstood. He explained that whatever was going on with my abdominal pains (he suggested PCOS which I hadn’t even heard of at that point) had been ignored for so long that my body was starting to do things other than the normal pain response to try to draw my attention to the problem. My sight going was my body basically jumping around in front of me going “HEY ARE YOU EVEN LISTENING TO ME HELLLOOOOOOO??????”

He gave me some prescription strength painkillers and my sight started to come back as soon as they started to kick in. About 45 minutes after it started I could see well enough to walk around without help and within a day and a half I was back to normal. On top of that I finally had a scan booked to figure out what the hell was causing all the pain.

When I was 18, only a few months after graduating from high school, I started having seizures. Serious, triggered at the drop of a hat, knock me unconscious for an hour or more and leave me dazed for days kind of seizures.

I was rushed to hospital two or three times within the space of a week after passing out in the middle of cooking dinner or talking with my family, but the hospital could not find anything wrong with me. I spent a week in the hospital in a planned admission, connected to an EEG monitor for 23 hours a day with the doctors hoping to catch my seizures in action and finally figure out what they were. I don’t know how many seizures I had during that week, but at the end of it, they said that even after all that, there was nothing wrong with me. After that, they sent me to a psychologist.

I was diagnosed with PNES - Psychogenic Non-Epileptic Siezures. Essentially, it was explained to me, I had been ignoring my anxiety and PTSD for so long that my body was acting out just like @kamorth ’s had. When they started treating me for anxiety and PTSD, my siezures eventually turned into panic or anxiety attacks, and then stopped altogether.

too hot? change into thinner clothes!

still too cold? put on another layer!

still too hot? uh, get naked I guess?

still too cold? put on another layer!

Avoidance techniques for the cold:

-more coats, fire, hot food and drink, stay inside, fuzzy sweaters, ear muffs, become a burrito

Avoidance techniques for heat: