sleepy spoonie

It’s frustrating when your body can’t handle the amount of activity you want or need to do- and I’m not talking about exercise, I’m talking about activities as in the things you do everyday: showering, hobbies, work school, chores, hanging out with friends, watching tv, etc. Now just imagine not being able to do all of those things, even if you absolutely need to, imagine having to pick and choose every single day what you can do, and what is worth pushing past your symptoms for. Will I shower or do the dishes today? Cook dinner or do a hobby I haven’t been able to get to in a week? Rest or ignore the symptoms knowing I will feel worse later if I do so? It may seem like a silly, inconvenient, even stupid way of doing things to you, but to me this is my everyday life, if I do not make these wagers I will suffer for it, and oftentimes I will still suffer for it despite these sacrifices and my best efforts.

no one talks about how draining it is when your mood is constantly switching between "its okay, i don't care. l'll be okay" and "I don't know how much more I can take"

doctors: you're going to be in pain forever!!!! you'll never not be in pain so dont you dare expect that!!! but really how is your mental health? dont answer this question in the wrong way or ill have to Make Some Calls. I'm just trying to Help You Get Better. but also you'll never Really be better. This new med should maybe help but if it makes you feel funny stop immediately. see you in 3 months!

chronic fatigue will have u thinking things like i miss washing and chopping vegetables

i miss doing laundry so much

The solution to ableism isn't for me to "stop calling myself disabled", it's for everyone to stop treating "disabled" as a bad word

No but I'll forever side-eye the "activism" that prioritizes telling people they shouldn't identify as disabled above insisting that people who are disabled get treated better

Huh?  Interesting.  Turns out you CAN’T cure your chronic illness(es), by convincing yourself you don’t have chronic illness(es)

choosing to allocate spoons to hanging out and having a good time at the cost of perfectly completing all your work is not a failing it is in fact an act of survival. “too sick to work = too sick to play” is in fact ableist bullshit that you don’t have to buy into. and the fact that leisure time is treated like a privilege is a fucking travesty

Say it with me! Wheelchairs aren’t sad! Mobility aids aren’t sad! Mobility aids are instruments of freedom!

So this post is the single reason I took my meds today. Reblogging out of duty.