The Numbers Behind the Autism Tsunami
Super informative!
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The Numbers Behind the Autism Tsunami
Super informative!

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(Reblog) Why yes, I am Autism Aware.
Originally appeared on: http://four-sea-stars.blogspot.com/2013/04/why-yes-i-am-autism-aware.html
April is Autism Awareness month. And every April, I'm never quite sure what to think about it, to be honest. When you live with something every day, and it's such a big part of your life, you tend to just man-up and deal with things. And every April I tend to get squeamish and just wish the whole thing would go away. Sure, I think the idea of awareness is a good thing, don't get me wrong. I just don't like the spot-light shining in my windows. I feel like what I do, what we do and how we do things, is on display for everyone to see and go "Ohh" and "Ahh" and exclaim, "This is Autism....I get it now."
But the thing with Autism is this---its all the time. It's not one day or even one month. It's all the time. It's late at night when sleep is elusive and just out of reach. It's the routine we follow and it's the clothes we wear. It's the food we eat and what we don't eat. And more specifically, Autism is what we eat on a certain day, a certain way, and how the plate is set with the milk at exactly eleven o'clock, as if the plate were a clock, every single meal. Autism is taking the exact same way to the store, never deviating. It's going up certain aisles and down others. It's the same DVD that's been in our minivan since 2010. (Megamind, if you're curious.) And it's also knowing which store to go to and when, and which one has paper towels in their bathrooms and not the sonic air blasters. Autism is dealing with meltdowns and people staring. It's sometimes feeling the weight of the world on your shoulders and wishing like hell, just once, everyone would mind their own business. Autism is the flapping, toe walking, lining up toys, singular play and lack of interest in others. It's hours and hours of therapy, IEP's and wishing that sometimes you could catch a break---and realizing that the only break you may get is the one in the therapy waiting room. Autism is all that. But it's also something else, something more. Something you won't see in a single day or even in a month. Autism is coming to terms with a new life, a new way of living. It's letting some people go and drift out of your life, while finding others. Autism is sometimes being alone when things are at their worst, yet knowing deep down, you would never dream of being any place else. Autism is looking at your child and laughing at their joke and being amazed, truly amazed, at the child in front of you. Autism is getting that first smile, that first word and that first look into their eyes. Autism is being comfortable in your own skin and helping your child grow into the person they are to become---because you see potential. You see their greatness. Autism is finding out that things are different but its also knowing you wouldn't change it for the world. It's finding out too, that you're a different person---a stronger, wiser, person. A person you never thought you'd be. And to take a minute and look back and remember your old self? It's like looking into someone else's life, peering into their rear view mirror and realizing that what's come into focus is different from what you expected, but not completely foreign. And it's realizing that this, this is where you belong. And that is Autism for us. That's what you'll find when you peer into my windows and take a peek into my life. You'll find Autism, but you'll also find much more. Much, much more. Autism is a part of us and a part of our lives. Autism just is, it's who we are. And I wouldn't change that for the world, I wouldn't want to. Autism simply is. Autism simply is, us.
justanothershrinkingviolet:
I’ve mentioned before on this blog that I have two younger brothers who have autism. I usually help my parents put my brothers to sleep, so last night, I stayed with one of my brothers while he tried to fall asleep. For a while, he was listening to music while I was on my laptop, but after after about fifteen minutes, he reached over to me and grabbed my hand.
I closed my laptop and moved from my seat onto the pull-out bed next to where my brother was laying. Once I was close enough, my brother used his other hand to touch my face as he continued to smile warmly at me.
My brothers and I have always had a good relationship, and I’m really pleased with how they’ve grown to become such loving and affectionate people over the years. Their verbal skills may be limited, but they have found their own ways to say that they care. I am always really touched by these tender moments, and I try not to take any of them for granted.
We held hands for several minutes, neither of us saying anything. Eventually, my brother interrupted the silence. He glanced at me with a curious look on his face as he asked, “September 2099, home?”
Although the question initially threw me, I knew what he was trying to say. He was trying to ask me if in September of 2099, whether he would have to start school again, or if he would be allowed to stay home. After he asked me that question, I leaned over and hugged him as I told him that he could stay home.
My brother - my sweet, lovely, innocent brother - cannot understand the concept of death. He has no idea that in the year 2099, he, our other brother, and I will most likely be dead, and our parents will have definitely passed on. All he cares about is whether or not he’ll still have to go to school, or if he can stay home and play video games.
Our grandparents on my mother’s side passed away many years ago; the three of us were all in elementary school at the time. Yet, to this day, my brothers still occasionally ask us if we can go to “Grandma’s house”. They haven’t been there in over a decade, but they still remember it. They don’t understand that other people are living in that house now. We tried to explain it to them be equating it to a concept that they did understand. We told them that the house was “garbage”, because they know that once something is thrown in the garbage, it is gone and you can’t get it back.
At the beginning of this year, when I was seriously contemplating suicide, I spent a lot of time thinking about how my death would be explained to my brothers. How do you explain the concept of death to two people who have no idea that it even exists? I mean, one of my brothers still asks for our grandfather, who, as I mentioned earlier, has been dead for over a decade. Do my brothers just think that our grandparents have gone on an extensive vacation? I can’t know exactly how they think, of course, but I spent many days wondering how my absence would be explained to my brothers. I wondered if I would be reduced to “garbage” as well, but my brothers have only ever assigned the word to inanimate objects, not people.
I don’t know how my parents would have tried to explain my death to my brothers. What I do know is how confused my brothers would have been. How they would have asked for me. How they would have gone to my bedroom and banged on the door for hours, calling my name. And I know that I could never have done that to them. I couldn’t possibly hurt my brothers, both of whom mean the absolute world to me.
I’ve said it before, but I’ll say it again: my family - my parents and my brothers - are the main reason why I never went through with my plans. I think that this post pretty clearly explains why.
Thanks for reading.
Cheers,
Violet
This is beyond beautiful. Our heart goes out to Violet and all those like her. You're such a strong person. We hope to have more people like you around us!
Photographed in Karachi, Pakistan | March 2013. This 22 year old young man sought speech therapy for dysfluent speech. We are so very proud of how far he has come. He not only volunteered to be photographed, he also asked so bravely if he could write his name down. Also goes to show how he's not embarrassed by being guilty of seeking speech therapy. Way to break the barriers! We are so so so proud of him, and he is such an inspiration to us all :) The message that he has written is so accurate, because surviving dysfluency has become his strength and he is NOT ashamed of it! Because in the end, it really is okay. For those of you who don't know, dysfluent speech comprises stammering and stuttering, what is commonly known in our society as 'haklaana,' and yes, IT CAN BE CORRECTED! Speech therapists are definitely unsung heroes :)
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Who doesn't love a true story of courage? :)
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Bol. Speak. Faiz Ahmed Faiz
This poem so correctly captures our mission. "bol ke lab aazaad hain terey" - speak, for your lips are free.
Speak up, everybody. Your lips are free, your tongue is yours, your body is your own, your life is yours!
‘Speak’ by Faiz Ahmad Faiz Speak; for your lips are free Speak; your tongue, even now, is yours This lithe body remains your own Speak; for your life, even now, is yours. Look, for in the ironworker’s shop Flames do rage; the iron is red The locks have started to come undone; Every link of the chain is opening. Speak; this little time is enough Before the end of your body and your voice Speak; for truth lives on even now Speak; what you have to say - say it.
“The brain is not like a pudding; it is more like an exquisite, traditional engine.” People with autism who lack “theory of mind” are missing the “tiny gadget in the big engine that allows us effortlessly to take into account what another person wishes, believes and thinks”. Uta Frith
From an intriguing article in the Guardian
(via curiesourandcuriesour)
The Big D.
Depression is one of the most common conditions to go unnoticed, undiagnosed, and untreated. As a result, the individuals are made to hear some of the most nasty things, but what most people forget is that getting better or even having control over onself is something that they really hope and struggle for. And most importantly, they still have feelings, and what you say to them may stick with them forever, and be counter-productive.
Don't let depression be the boss of you. Don't let it control you. Tell depression who's boss! Raise awareness for depression! They can get better and you can help them get better!
If you have a message for people with depression who have contacted us, or would like to make a contribution to our awareness-through-photography portfolio, please send them to [email protected] or www.facebook.com/ProjectBol and do remember to mention whether you'd like to be named or stay anonymous :)
A part, not apart.
Staring them down and making them conscious? That's called being judgmental and myopic. They may look slightly different from some of us, but they're just as human as you and I, and they don't deserve to be judged from the corner of your eyes. Let them be a part of the society, and accept their differences! It's okay to be different!
Photographed in Karachi. February 7th, 2013.
For contributions, contact us on [email protected], or visit our Facebook page: www.facebook.com/ProjectBol
A poem about Autism.
A poem written by the parent of a child with autism.
Without autism I wouldn’t appreciate the small miracles that occur everyday - miracles that may be overlooked - or simply expected - He smiled at me, he flushed the toilet, he didn’t pinch anyone, he slept in, he pranced through the house with clothes ON…. all of these thankful moments have happened just today! How much better could it get? Without the big “A” I might overlook how incredible these small miracles are - and miss out on the moments.’ ♥
So sweet, and so true! Teaches us to learn to appreciate the little things in life.
Source: http://wwwjodieshropshire.tumblr.com/post/43147035965/a-poem-written-by-a-parent

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/ai lʌv spitʃ pəθalədʒi/
If you can read this, we should be friends, and you should follow us :)
We hope to do the same some day, in Pakistan :)
We feel the same way!
You say things.
Source: http://thanksandyes.tumblr.com/post/43082932963/different-kinds-of-minds-and-different-kinds-of-love
Different kinds of minds and different kinds of love.
Temple Grandin did a TED Talk on the need for “all kinds of minds”. During a short Q&A at the end, as a follow up to a question on advice for adults who feel cut off from the autistic children in their life, the interviewer asks:
“Is it unrealistic for them to hope or think that that child loves them as most wish?”
Temple’s response:
“Well, I want to tell you, that child will be loyal, and if the house is burning down, they’re going to get you out of there.”
The talk itself is a needed lesson on how diversity in ways of thinking and viewing the world benefits the common good. It’s fitting that it ended with some attention, though brief, to how we express love. She doesn’t really answer the question, which is for the better because it’s based on a flawed premise. Our love for others - especially our family, and most of all children - is not founded on what they do for us; for instance, whether they provide the particular variety of warm fuzzies we yearn for.
I do think everyone deserves that from someone. In those we find easy to love, we often get that, which is both fine and good. As an educator (and as an older sister, come to think of it), it’s good to be reminded that kids are not here for my satisfaction. I am here for their well-being.
It’s good to be reminded, once in a while, that love is not about me, but rather about knowing and accepting a person as they are and wanting nothing in return except the same
Temple Grandin did a TED Talk on the need for “all kinds of minds”. During a short Q&A at the end, as a follow up to a question on advice for adults who feel cut off from the autistic children in their life, the interviewer asks:
“Is it unrealistic for them to hope or think that that child...
"It’s good to be reminded, once in a while, that love is not about me, but rather about knowing and accepting a person as they are and wanting nothing in return except the same."

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Pretty sad in this day of age that a lot of people still don’t know what autism is.
Spread awareness about autism! Early intervention is vital for children with autism!
#autism#heart#mind#soul
Totally believable.