Me and POTS

- Emergency special number (if you need information) (please, use it carefully, too many calls will make the line crash): 0800 40 60 05 

- Schools and universities are closed tomorrow. (in the whole country btw)

- In Paris and IDF, it’s advised NOT TO MOVE. Don’t leave your home or the place you’re staying in unless you really have to.

- IF YOU NEED A PLACE TO CRASH IN/ WANTS TO WELCOME SOMEONE: follow the hashtag #PORTEOUVERTE

- 5 metro lines are closed: 3, 5,8 9 and 11

- Maps of the attacks (source: Libération). Streets are probabky closed around these areas.

My right hip is blaring at me Like a car alarm that you can’t turn off Because you’ve lost your keys

So you call a mechanic Who says that he can’t turn it off There’s nothing wrong with the car

So you call another mechanic Who says he hears no noise Perhaps it’s all in my head?

So you call another mechanic Getting annoyed this time Who says that if the car wasn’t so big Then the alarm wouldn’t go off

So you call another mechanic Who says that the engine is fine Have you tried checking the oil? He can’t check the oil Because he’s the engine man

So you call another mechanic Teary and tired by now Who says that he can give you some earplugs for the noise

WE ARE

Eye Ring is more than just a ring.

Designed a few years ago by Korean designer Jeong Yong, it is the concept of a scanner reader for blind people. The idea was to allow people to read non-Braille books and to avoid the costs of a normal desktop scanner.

A follower sent me a message a day or two ago asking if there was a master post for lesser known chronic illnesses. To my knowledge there isn’t so it seems worth starting one. Would people be able to either reblog this with their additions or message them to me? I’ll edit it as more people add to it.

A

- Addison’s disease

- Amplified musculoskeletal pain syndrome (AMPS)

- Ankylosing spondylitis

- Arteriovenous malformation (AVM)

- Asthma

B

- Bartonella, babesia and borrelia infections (commonly associated with lyme disease)

C

- Chiari malformation or Arnold chiari malformation

- Chronic fatigue syndrome (CFS)

- Circadian sleep disorders

- Coeliac disease

- Common variable immune deficiency (CVID)

- Complex regional pain syndrome (CRPS) or reflex sympathetic dystrophy 

(RSD)

- Costochondritis

- Crohn’s disease

D

- Diabetes type 1

- Diabetes type 2

- Dysautonomia

E

- Ehlers-Danlos syndrome (EDS)

- Endometriosis

- Eosinophilic gastroenteritis

F

- Fibromyalgia

G

- Gastroparesis

- Graves’ disease

H

- Hashimoto’s thyroiditis or chronic lymphocytic thyroiditis

- Hepatitis A

- Hepatitis B

- Hepatitis C

- Hereditary hemorrhagic telangiectasia (HHT) or Osler–Weber–Rendu disease

- Hypermobility syndrome

- Hyperthyroidism (overactive thyroid)

- Hypothyroidism (underactive thyroid)

I

- Interstitial Cystitis or painful bladder syndrome (IC/PBS)

J

K

L

- Lupus or systemic lupus erythematosus (SLE)

- Lyme disease

M

- Migraines

- Mixed connective tissue disease (MCTD) or Sharp’s syndrome

- Multiple Hereditary Exostoses (MHE)

- Multiple sclerosis (MS)

- Myalgic encephalomyelitis (ME)

- Myasthenia gravis

N

O

- Occipital neuralgia

- Orthostatic hypotension

P

- Paroxysmal supraventricular tachycardia (PSVT)

- Periodic fever adenitis pharyngitis aphthous (PFAPA) ulcer syndrome

- Piriformis syndrome

- Polycystic ovary syndrome (PCOS)

- Postural orthostatic tachycardia syndrome (POTS)

Q

R

- Raynaud’s disease or Raynaud’s phenomenon

- Rheumatoid arthritis

S

- Sarcoidosis

- Seronegative arthritis

- Sleep apnea

T

- Trigeminal neuralgia

U

- Ulcerative colitis

- Undifferentiated connective tissue disease (UCTD)

- Upper airway resistance syndrome (UARS)

V

- Vasculitis

- Vestibulodynia or vulvar vestibulitis

- Vulvodynia

W

X

Y

hyper-morality (extreme black and white moral reasoning)

hyper-responsibility (feeling responsible for everything to a self-destructive degree, even feeling responsible for events which have nothing to do with you)

intolerance of uncertainty, (feeling very uncomfortable if you do not know everything about a given situation). 

Excessive and persistant desire for reassurance

Extreme bouts of anger