We had an occupational therapy evaluation of our darling Diva today, and I'm really looking forward to moving forward with supporting her to blossom even more. As the occupational therapist left, s...
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@joyoutsidethebox
We had an occupational therapy evaluation of our darling Diva today, and I'm really looking forward to moving forward with supporting her to blossom even more. As the occupational therapist left, s...

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Trust is broken. I burn out. I burn out, not because of Ez, not because of Diva. I burn out because of the systems that support them are not so supportive at all. I burn out because there are simple changes to be made, some of which are already law.
My daughter is amazing. I want to write her story, but I never know where to begin...
Of course, there will always be other mothers who think you're too anxious and treat your child like a baby. So what? Your child needs you.
Rosalie Greenburg
I write now what 15 years past I would still not have thought possible to write: that if today I were given the choice to accept the experience, with everything that it entails, or to refuse the bitter largesse, I would have to stretch out my hands -- because out of it has come, for all of us, an unimagined life. And I will not change the last word of the story. It is still love.
Clara Claiborne Park, writing in the 1970s of her autistic daugther

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I am tired of reading about the lack of conscience, social interest, or engagement that children with reactive attachment disorder supposedly have. Let's be clear⦠Reactive attachment disorder and ...
Learning is experience. Everything else is just information.
Albert Einstein
It is also crucial to keep in mind that no matter how nonsensical and frustrating our child's feelings may seem to us, they are real and important to our child. It's vital that we treat them as such in our response.
Daniel Siegel
Children must feel safe and cared for in order to devote themselves fully to exploring and learning, and children learn best from those with whom they have caring, trusting relationships.
Peter Gray
I'm trusting that the Universe will provide me with the right opportunities at the right time. I'm trusting that if I keep putting myself (and my family) out there, it will make a difference. I'm g...

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Yesterday, Ez found a movie on Netflix — The Tigger Movie — that I thought would be perfect and not triggering. Only, it turns out, The Tigger Movie is all about Tigger not having any family. He waits and waits for his family the entire movie, only to be completely disappointed in the end. He finds out that he’s the only Tigger in all of existence, and that no one is writing to him. Yes, I realize that the true ending is that Tigger realizes he had a family all along, but Ez could not see this ending. He saw the sad, bleak despair of Tigger, and rewinded. Again. And again. I cut him off, but, sadly, the Husband did not know to do so when Ez started this pattern again tonight.
As you can imagine, the rest of the night was disastrous.
This is one of the unfortunate things about childhood trauma. Triggers pop up continuously, and childhood movies and cartoons are really just fantastic at triggering my child. Do you know how many childhood movies have some bitchy or dead parent? Do you know how many characters lose family members, often towards the beginning? We’ve ruled out so many films — Bambi, The Lion King, & Dumbo, clearly, but also The Fox & The Hound, Peter Pan, Pinocchio, Jungle Book, Mary Poppins (oh my gosh, when Mary leaves — seriously, the worst), and so many more. Some are only tangentially triggering and snuck up on us with a loud scream and a punch. Milo & Otis? I so thought that was going to be well-loved, until the separation of the two just became far too much for Ez, and he fell apart at the seams.
What do you do? We avoid. We avoid what we can, because there’s enough triggering things out there that we can’t avoid. We watch Curious George, Dora, and only certain episodes of Wild Kratts. Some documentaries, especially Jeff Corwin, go over well. Superhero shows — a big no. Family movie nights have dwindled down to the same 4-5 Disney straight-to-DVD sequels. We avoid because he’s not ready yet. His brain’s not there. It can’t adjust and accommodate new information. It hasn’t even accommodated the information that he is not alone. It doesn’t know that he has a family. It doesn’t know that he is safe and loved. It really, really doesn’t. So how can it possibly know that Tigger and he are separate entities? How can it know that Tigger, too, will be safe and loved?
I don’t know how long we’ll avoid. I don’t feel like, in this case, we’re missing much, though there are a few Disney movies I would love to share with him one day (Disney-loving freak right here!). And I do miss pizza & a movie night, a family tradition that I’ve sought since before kids actually arrived. So, in the meantime, I’ll take all the feel-good, no-one-gets-lost, happy-always film and television recommendations that you can make — though I haven’t yet gotten sick of Curious George (talk about one rocking’ show!)
Things are going to be real on this blog. I'm going to talk about my real kids with real stories -- the joys, the challenges -- and I'm going to talk about my life. I'm putting a lot of stuff out t...
Do I join the YMCA which has child care, flexibility, and affordability? Or, do I go back to hot yoga which helps my brain and was the only thing that kept my hives under control?
(Hot yoga is basically the equivalent of allergy shots since I’m allergic to overheating and my own sweat. Literally.)
It is so hard to stay active and fit as the mom of two kids with disabilities. So hard. Suggestions welcome.
Our son's application for private school asked which emotions he has difficulty processing. My husband said, "Yes." We then made the list. We should have just written all of them. Or, "yes".
I feel so sad for myself and my students these days. I used to teach in a very child-directed way. I believe in child-led learning, child-led instruction, and child-led interactions. I believe that all children, even children with significant disabilities, know what they need and can find their way to it within a rich, supportive environment. I believe in the importance of play. I believe in the importance of being in relationship. I believe in teaching and living on a child's time scale.
The problem is that our schools don't believe this anymore. Despite the past fifty years of research into developmentally appropriate practice, our schools don't believe this. Adults lead. Adults decide what children need to learn. Adults dictate the schedule. Adults dictate the work. Adults dictate the ways that we show what we know. There's no respect, no mutual growth, no relationship in this way of teaching, scheduling, and developing a classroom.
I've flown under the radar for the past few years. I've been allowed to be creative and explore different ways of encouraging my students to be in charge of the classroom. It's been beautiful -- and they've learned so much more than they ever did within structured tasks and teacher-directed group projects (that are often meaningless to the children!). I'm not under the radar anymore. So I'm back in the mainstream -- not by choice.
It depresses me. It's not fun. It's not fun for me. It's not fun for the students. It depresses me to know that this is why my son is failing out of public school, and why he may still struggle in private school. He needs a play-based curriculum, child-directed interactions, and room to explore. Really, we all needed that. We all need it. We need to feel autonomous and explore our own mastery of self-directed topics. Some of us, though, can handle the frustration and boredom of typical schooling. We can suffer through. Few of us escape with our love of learning, problem-solving, imagination, and creative curiosity intact, but most of us survive. A few of us, though, don't. We end up in special education, we end up as failures, we drop out, we don't make it. Our society blames the kids, but I blame the school system.
It kills me that I have to be part of this.

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10,000 hours.
I haven't written in a while because our son has been in the hospital. Ten straight days in the children's psychiatric hospital. The average stay is 3-4 days, and I don't think they believed us entirely that a six year old needed this. But I'm Ima, I've taught special education for nearly a decade, and it is serious if I bring him to the hospital. Ten days later, I hope things are better. I think his diagnoses are more accurate -- as accurate as they can get, between being 6 years old and the DSM being nothing but a series of social constructs. Reactive attachment disorder, bipolar disorder - not otherwise specified, and developmental coordination disorder, plus the history of trauma. I know his medications are slowing him down, which he needs. He needs to sleep, to nap, to rest his bones. I hope they make him feel better internally. He's sad. He's sad and mad and scared. He's six, and he just spent ten days in the psychiatric hospital. He almost certainly thinks that it is because he was bad, and I know he thought we were abandoning him. He is about to start his fifth school in the last two years, and his 8th or 9th in his lifetime. How can he be anything but scared? I don't know that there is anything for us to do, except keep showing up. That is what we did when he was in the hospital -- visiting 3-4x per day. That is what we will do now -- playing games, making snacks, giving hugs, and listening. Listening to his words and his actions. Over and over and over, until 10,000 hours of love replace the 10,000 hours of fear.
I am so over the way we use language around kids, especially kids with disabilities. I am a really picky parent at IEP meetings, and make them reword things to be more respectful of my child. If I never hear any of these terms & phrases again, it will be too soon --
behaviorally challenged
severe kid
highest functioning / higher functioning
low kid
low-functioning
low intelligence
emotionally disturbed
intellectually disabled
he knows what he's doing
bad
brat
he's nonverbal
obsessive, ritualistic, rituals
Terms I prefer (some of them more than others):
person-first language (child with a disability)
with significant delays
developmentally young
prefers structure & routine
special interests
child with challenging behavior
he has difficulty with (lagging skill, environment)
child with (name the mental health concern explicitly!)
requires a high level of support
And what I really love:
Child with (strengths!)
Child with (needs!)
Child with (talents!)